# Early recovery **URL:** https://patientforum.anthonynolan.org/c/early-recovery/11.md?page=2 [Latest](https://patientforum.anthonynolan.org/latest.md) · [Categories](https://patientforum.anthonynolan.org/categories.md) · [Tags](https://patientforum.anthonynolan.org/tags.md) **Page:** 3 --- ## [New telephone Peer Support Service for transplant patients](https://patientforum.anthonynolan.org/t/new-telephone-peer-support-service-for-transplant-patients/255)
**Author:** [@Hayley\_Anthony\_Nolan](https://patientforum.anthonynolan.org/u/Hayley_Anthony_Nolan)\ **Replies:** 0\ **Last updated:** [February 2, 2017, 4:43pm UTC](https://patientforum.anthonynolan.org/t/new-telephone-peer-support-service-for-transplant-patients/255 "2017-02-02T16:43:38Z")
The patient services team would like to announce a new support service called Peer Support. Lots of people have contacted us asking if we can put them in touch with someone who has had a transplant so they can talk about… --- ## [Tiredness](https://patientforum.anthonynolan.org/t/tiredness/252)
**Author:** [@Laura1102](https://patientforum.anthonynolan.org/u/Laura1102)\ **Replies:** 5\ **Last updated:** [February 2, 2017, 4:16pm UTC](https://patientforum.anthonynolan.org/t/tiredness/252 "2017-02-02T16:16:25Z")
I am +52 post transplant, just wondering if people who are further in recovery than I am can tell me when their tiredness started to get better and energy levels increased. I am also looking for advice on gvhd my skin o… --- ## [EBV](https://patientforum.anthonynolan.org/t/ebv/250)
**Author:** [@Laura1102](https://patientforum.anthonynolan.org/u/Laura1102)\ **Replies:** 3\ **Last updated:** [January 20, 2017, 3:18pm UTC](https://patientforum.anthonynolan.org/t/ebv/250 "2017-01-20T15:18:00Z")
I am day +37 from BMT. I felt so well when I came home on the 23rd of December just in time for Xmas which was my goal, as to not delay my children’s Xmas. I felt good for the first two and thought if I carry on like thi… --- ## [GVHD and physical contact](https://patientforum.anthonynolan.org/t/gvhd-and-physical-contact/236)
**Author:** [@Ali](https://patientforum.anthonynolan.org/u/Ali)\ **Replies:** 3\ **Last updated:** [November 21, 2016, 12:26pm UTC](https://patientforum.anthonynolan.org/t/gvhd-and-physical-contact/236 "2016-11-21T12:26:14Z")
Good morning, My husband is being treated for GVHD following a haplo transplant. Should we avoid kissing? Sorry if this has been asked before. Thank you. --- ## [Falling blood counts](https://patientforum.anthonynolan.org/t/falling-blood-counts/233)
**Author:** [@TJM](https://patientforum.anthonynolan.org/u/TJM)\ **Replies:** 9\ **Last updated:** [November 18, 2016, 2:58pm UTC](https://patientforum.anthonynolan.org/t/falling-blood-counts/233 "2016-11-18T14:58:50Z")
Hello, my hubby is +42 days out of stem cell transplant for AML, until today his counts have been steadily increasing but today the have dropped his platelets have gone from 119 to 94 his neutrophils have gone from 6.13 … --- ## [Day 63](https://patientforum.anthonynolan.org/t/day-63/229)
**Author:** [@Walshy2016](https://patientforum.anthonynolan.org/u/Walshy2016)\ **Replies:** 7\ **Last updated:** [November 15, 2016, 8:51am UTC](https://patientforum.anthonynolan.org/t/day-63/229 "2016-11-15T08:51:55Z")
Hi, my partner had stem cell ( myeloablative) transplant. He is now day 63 post it. He had ganciclovir started for cmv reactivation prophylactically. His counts have been dropping this past week or so and his renal funct… --- ## [emergency bone marrow. Petrified of results.](https://patientforum.anthonynolan.org/t/emergency-bone-marrow-petrified-of-results/173)
**Author:** [@josiemoss](https://patientforum.anthonynolan.org/u/josiemoss)\ **Replies:** 10\ **Last updated:** [October 31, 2016, 10:36pm UTC](https://patientforum.anthonynolan.org/t/emergency-bone-marrow-petrified-of-results/173 "2016-10-31T22:36:05Z")
Did t know where else to turn today. I had my routine check up today and my counts have all drastically dropped. Doctor says it’s either the valganciclovir I was on a couple of weeks ago which attacks bone marrow or its … --- ## [Stomach pains](https://patientforum.anthonynolan.org/t/stomach-pains/231)
**Author:** [@TJM](https://patientforum.anthonynolan.org/u/TJM)\ **Replies:** 4\ **Last updated:** [October 27, 2016, 11:06pm UTC](https://patientforum.anthonynolan.org/t/stomach-pains/231 "2016-10-27T23:06:04Z")
Hello, I’m a carer for my hubby who is now +26 from SCT with AML, today he complaining of stomach pains aswell as the nausia he has had which he had anti sickness drugs for. I’m wondering if this could be something to d… --- ## [Oral mucositis](https://patientforum.anthonynolan.org/t/oral-mucositis/218)
**Author:** [@Walshy2016](https://patientforum.anthonynolan.org/u/Walshy2016)\ **Replies:** 2\ **Last updated:** [August 9, 2016, 10:04am UTC](https://patientforum.anthonynolan.org/t/oral-mucositis/218 "2016-08-09T10:04:32Z")
Hi my fiancé is day 4 post transplant. He has developed painful mucositis this week. He is needing NG feeding and is on morphine syringe driver for pain. We have been doing saline mouth washes, some local anaesthetic was… --- ## [+30 post transplant and blood count still flat !](https://patientforum.anthonynolan.org/t/30-post-transplant-and-blood-count-still-flat/193)
**Author:** [@Sally](https://patientforum.anthonynolan.org/u/Sally)\ **Replies:** 6\ **Last updated:** [May 5, 2016, 7:20am UTC](https://patientforum.anthonynolan.org/t/30-post-transplant-and-blood-count-still-flat/193 "2016-05-05T07:20:51Z")
Hi, has anyone else had a stem cell transplant due to mylophbrosis! My partner is +30 post transplant and blood counts still completely flat. --- ## [Day 47](https://patientforum.anthonynolan.org/t/day-47/176)
**Author:** [@Michevans](https://patientforum.anthonynolan.org/u/Michevans)\ **Replies:** 7\ **Last updated:** [November 24, 2015, 6:26pm UTC](https://patientforum.anthonynolan.org/t/day-47/176 "2015-11-24T18:26:34Z")
Hi My father in law is now on day 47, and having fought off 2 colds which has taken it right out of him , all energy he had was being used to fight the cold , and with having the donor stem cell transplant, he has no en… --- ## [Hello from a newbie!](https://patientforum.anthonynolan.org/t/hello-from-a-newbie/171)
**Author:** [@Teejay](https://patientforum.anthonynolan.org/u/Teejay)\ **Replies:** 8\ **Last updated:** [November 20, 2015, 2:38pm UTC](https://patientforum.anthonynolan.org/t/hello-from-a-newbie/171 "2015-11-20T14:38:31Z")
Hi my name is Teejay and I was diagnosed with Non Hodgkin’s Lymphoma in June 2011. Following multiple relapses I had a unrelated donor transplant 2 weeks today. I am doing ok, though suffering from fatigue, nausea, loss … --- ## [Kidney problems](https://patientforum.anthonynolan.org/t/kidney-problems/157)
**Author:** [@Tillby](https://patientforum.anthonynolan.org/u/Tillby)\ **Replies:** 4\ **Last updated:** [October 11, 2015, 8:55pm UTC](https://patientforum.anthonynolan.org/t/kidney-problems/157 "2015-10-11T20:55:40Z")
My daughter is 42 days post transplant and everything was going ok but she has now developed a kidney problem. She has too much potassium in her blood. Her kidneys aren’t breaking it down. They gave her insulin yesterday… --- ## [Any tips on what to do when a family member gets a bad cold? Please help!](https://patientforum.anthonynolan.org/t/any-tips-on-what-to-do-when-a-family-member-gets-a-bad-cold-please-help/166)
**Author:** [@Poppy](https://patientforum.anthonynolan.org/u/Poppy)\ **Replies:** 2\ **Last updated:** [October 1, 2015, 6:48am UTC](https://patientforum.anthonynolan.org/t/any-tips-on-what-to-do-when-a-family-member-gets-a-bad-cold-please-help/166 "2015-10-01T06:48:02Z")
My daughter is day 42 post transplant and has already had to go back into hospital after catching a cold from her brother who has just started college. Her blood counts are struggling since then and now he has picked up … --- ## [Sickness and nausea](https://patientforum.anthonynolan.org/t/sickness-and-nausea/161)
**Author:** [@Michevans](https://patientforum.anthonynolan.org/u/Michevans)\ **Replies:** 3\ **Last updated:** [September 28, 2015, 9:33am UTC](https://patientforum.anthonynolan.org/t/sickness-and-nausea/161 "2015-09-28T09:33:23Z")
My father Iaw in now home recovering , we are aware that it is a long road for him to recover , the question I have is does anyone remember how long the sickness and nausea lasted ? Is there anything you can eat or drink… --- ## [Donor transplant age 70](https://patientforum.anthonynolan.org/t/donor-transplant-age-70/158)
**Author:** [@Michevans](https://patientforum.anthonynolan.org/u/Michevans)\ **Replies:** 14\ **Last updated:** [September 24, 2015, 4:24pm UTC](https://patientforum.anthonynolan.org/t/donor-transplant-age-70/158 "2015-09-24T16:24:51Z")
My father in law had his stem cell transplant last Wednesday , this is due to him having non Hopkins lymphoma, he is in a hospital that is about an hour away from us , he has been extremely tired , depressed , very sick … --- ## [Shaking and tiredness/muscle pain](https://patientforum.anthonynolan.org/t/shaking-and-tiredness-muscle-pain/156)
**Author:** [@josiemoss](https://patientforum.anthonynolan.org/u/josiemoss)\ **Replies:** 3\ **Last updated:** [September 14, 2015, 4:05pm UTC](https://patientforum.anthonynolan.org/t/shaking-and-tiredness-muscle-pain/156 "2015-09-14T16:05:22Z")
Just wondering about the above symptoms and what people’s experiences were and how long they lasted. I’ve been out of hospital 1 week, 3 since transplant but I’m really struggling. My legs feel like they don’t belong to … --- ## [From grafted to neutrophinic](https://patientforum.anthonynolan.org/t/from-grafted-to-neutrophinic/153)
**Author:** [@SJones](https://patientforum.anthonynolan.org/u/SJones)\ **Replies:** 4\ **Last updated:** [September 14, 2015, 3:59pm UTC](https://patientforum.anthonynolan.org/t/from-grafted-to-neutrophinic/153 "2015-09-14T15:59:31Z")
Six weeks post transplant after initial graft, neutrophinic again. Waiting results of marrow test but anyone any experience of this? Thanks --- ## [Signs you felt that you were engrafting](https://patientforum.anthonynolan.org/t/signs-you-felt-that-you-were-engrafting/152)
**Author:** [@josiemoss](https://patientforum.anthonynolan.org/u/josiemoss)\ **Replies:** 6\ **Last updated:** [August 29, 2015, 8:55pm UTC](https://patientforum.anthonynolan.org/t/signs-you-felt-that-you-were-engrafting/152 "2015-08-29T20:55:05Z")
Hi, For those who have been through transplant I wondered if there was anything you felt when you were beginning to engraft. I don’t want to get too excited but this morning my mouth felt totally different, it’s still … --- ## [Day 0](https://patientforum.anthonynolan.org/t/day-0/146)
**Author:** [@josiemoss](https://patientforum.anthonynolan.org/u/josiemoss)\ **Replies:** 7\ **Last updated:** [August 24, 2015, 10:52am UTC](https://patientforum.anthonynolan.org/t/day-0/146 "2015-08-24T10:52:16Z")
Crumbs. It’s day 0 tomorrow. Any last minute advice! One very anxious/ excited/ nervous patient! --- ## [When do blood counts pick up post transplant?](https://patientforum.anthonynolan.org/t/when-do-blood-counts-pick-up-post-transplant/143)
**Author:** [@AlfieB](https://patientforum.anthonynolan.org/u/AlfieB)\ **Replies:** 12\ **Last updated:** [August 24, 2015, 10:48am UTC](https://patientforum.anthonynolan.org/t/when-do-blood-counts-pick-up-post-transplant/143 "2015-08-24T10:48:13Z")
Day 12 and nothing so far --- ## [How long were you in hospital post transplant?](https://patientforum.anthonynolan.org/t/how-long-were-you-in-hospital-post-transplant/145)
**Author:** [@josiemoss](https://patientforum.anthonynolan.org/u/josiemoss)\ **Replies:** 2\ **Last updated:** [August 12, 2015, 7:04pm UTC](https://patientforum.anthonynolan.org/t/how-long-were-you-in-hospital-post-transplant/145 "2015-08-12T19:04:33Z")
If you can remember I was wondering how long people were in hospital after day 0. My team seem to try to get you out and home fairly quickly but I’m guessing it all depends on counts? After chemo I was sent home while st… --- ## [Nausea and taste changes](https://patientforum.anthonynolan.org/t/nausea-and-taste-changes/139)
**Author:** [@RobA](https://patientforum.anthonynolan.org/u/RobA)\ **Replies:** 4\ **Last updated:** [June 30, 2015, 10:04am UTC](https://patientforum.anthonynolan.org/t/nausea-and-taste-changes/139 "2015-06-30T10:04:37Z")
Hi all, I had a SCT on May 19 at the Churchill Hospital in Oxford. I am now Day 40 (it’s amazing how time flies) and have been making steady progress since leaving hospital with little in the way of complications. The … --- ## [itchy skin](https://patientforum.anthonynolan.org/t/itchy-skin/121)
**Author:** [@cynthia](https://patientforum.anthonynolan.org/u/cynthia)\ **Replies:** 4\ **Last updated:** [May 19, 2015, 12:10pm UTC](https://patientforum.anthonynolan.org/t/itchy-skin/121 "2015-05-19T12:10:08Z")
Hi, my husband is experiencing itchy skin on his back and chest, no rash though. He’s 86 days post transplant and we’re on the look out for graft v host symptoms as his ciclosporin is being reduced slowly now. Before c… --- ## [Reducing ciclosporin](https://patientforum.anthonynolan.org/t/reducing-ciclosporin/120)
**Author:** [@cynthia](https://patientforum.anthonynolan.org/u/cynthia)\ **Replies:** 2\ **Last updated:** [May 8, 2015, 9:27am UTC](https://patientforum.anthonynolan.org/t/reducing-ciclosporin/120 "2015-05-08T09:27:48Z")
My husband David is now 84 days post stem cell transplant with matched 10/10 unrelated donor following induction chemo and reduced intensity conditioning ( he’s 62 and an AML patient). Since transplant he has been remark… --- ## [Loss of appetite and taste changes - what works for you?](https://patientforum.anthonynolan.org/t/loss-of-appetite-and-taste-changes-what-works-for-you/114)
**Author:** [@petervee](https://patientforum.anthonynolan.org/u/petervee)\ **Replies:** 20\ **Last updated:** [April 18, 2015, 4:39pm UTC](https://patientforum.anthonynolan.org/t/loss-of-appetite-and-taste-changes-what-works-for-you/114 "2015-04-18T16:39:30Z")
Just thought I would share an article which I saw last weekend on the BBC online news site in the ‘Health’ section, itwas an article titled ‘Mash and gravy, the strange effects of cancer on appetite’. It was an article a… --- ## [Avoiding infection - how to tell people not to see you if they're ill?](https://patientforum.anthonynolan.org/t/avoiding-infection-how-to-tell-people-not-to-see-you-if-theyre-ill/63)
**Author:** [@Amy\_AnthonyNolan](https://patientforum.anthonynolan.org/u/Amy_AnthonyNolan)\ **Replies:** 5\ **Last updated:** [April 8, 2015, 8:08pm UTC](https://patientforum.anthonynolan.org/t/avoiding-infection-how-to-tell-people-not-to-see-you-if-theyre-ill/63 "2015-04-08T20:08:45Z")
Hi everyone, A few people have been talking to us this week about the challenges of avoiding viruses and infections post-transplant. One of the challenges is that friends and family don’t always understand how important… --- ## [Top tips for going home after transplant](https://patientforum.anthonynolan.org/t/top-tips-for-going-home-after-transplant/111)
**Author:** [@Amy\_AnthonyNolan](https://patientforum.anthonynolan.org/u/Amy_AnthonyNolan)\ **Replies:** 0\ **Last updated:** [February 11, 2015, 3:30pm UTC](https://patientforum.anthonynolan.org/t/top-tips-for-going-home-after-transplant/111 "2015-02-11T15:30:04Z")
Hi everyone, We’ve had some great comments on this Facebook post about tips for people going home after a transplant. https://www.facebook.com/anthonynolanpatients/photos/a.347994965406189.1073741853.174100609462293/34… --- ## [Isolation tips](https://patientforum.anthonynolan.org/t/isolation-tips/46)
**Author:** [@Amy\_AnthonyNolan](https://patientforum.anthonynolan.org/u/Amy_AnthonyNolan)\ **Replies:** 4\ **Last updated:** [July 29, 2014, 12:55pm UTC](https://patientforum.anthonynolan.org/t/isolation-tips/46 "2014-07-29T12:55:05Z")
Hi everyone, It’s Amy here from Anthony Nolan. We recently started a discussion on our Facebook page about the challenges of isolation. So far we have had some great suggestions on dealing with isolation including star… --- ## [Would you like to join our patient and families panel?](https://patientforum.anthonynolan.org/t/would-you-like-to-join-our-patient-and-families-panel/30)
**Author:** [@Annie\_anthonynolan](https://patientforum.anthonynolan.org/u/Annie_anthonynolan)\ **Replies:** 0\ **Last updated:** [March 13, 2014, 12:01pm UTC](https://patientforum.anthonynolan.org/t/would-you-like-to-join-our-patient-and-families-panel/30 "2014-03-13T12:01:27Z")
We’re looking for more people who’d like to share their thoughts and ideas about our work for patients and their friends and families by joining the panel. Find out more by emailing patientinfo@anthonynolan.org or callin… [Previous page](https://patientforum.anthonynolan.org/c/early-recovery/11.md?page=1) [Next page](https://patientforum.anthonynolan.org/c/early-recovery/11.md?page=3)