# General advice **URL:** https://patientforum.anthonynolan.org/c/general-advice/7.md [Latest](https://patientforum.anthonynolan.org/latest.md) · [Categories](https://patientforum.anthonynolan.org/categories.md) · [Tags](https://patientforum.anthonynolan.org/tags.md) --- ## [Bruising on arms](https://patientforum.anthonynolan.org/t/bruising-on-arms/623)
**Author:** [@Paulasmith](https://patientforum.anthonynolan.org/u/Paulasmith)\ **Replies:** 3\ **Last updated:** [October 17, 2026, 1:42pm UTC](https://patientforum.anthonynolan.org/t/bruising-on-arms/623 "2026-10-17T13:42:19Z")
I was diagnosed with AML in September 2022. I’ve had 3 rounds of chemo and double dose of full body radiotherapy, culminating in cord transplant in February 2023. I am now in remission but still can see the bruising I ha… --- ## [Struggling to get back to sleep](https://patientforum.anthonynolan.org/t/struggling-to-get-back-to-sleep/786)
**Author:** [@Levante](https://patientforum.anthonynolan.org/u/Levante)\ **Replies:** 1\ **Last updated:** [May 8, 2026, 6:06pm UTC](https://patientforum.anthonynolan.org/t/struggling-to-get-back-to-sleep/786 "2026-05-08T18:06:06Z")
Hi my name is Levante .I have a 21 year old son who needs a bone marrow transplant. I am staying with him in the hospital as we are having treatment to get his bone marrow a negative result. This is the 6th week. I go to… --- ## [Insomnia Sleep issues](https://patientforum.anthonynolan.org/t/insomnia-sleep-issues/785)
**Author:** [@Levante](https://patientforum.anthonynolan.org/u/Levante)\ **Replies:** 0\ **Last updated:** [May 8, 2026, 8:37am UTC](https://patientforum.anthonynolan.org/t/insomnia-sleep-issues/785 "2026-05-08T08:37:46Z")
Anyone have any advice on waking at 4am and can’t go back to sleep please? --- ## [Chimerism/ Mds/Dli](https://patientforum.anthonynolan.org/t/chimerism-mds-dli/625)
**Author:** [@Parkrunner](https://patientforum.anthonynolan.org/u/Parkrunner)\ **Replies:** 1\ **Last updated:** [March 12, 2025, 10:57am UTC](https://patientforum.anthonynolan.org/t/chimerism-mds-dli/625 "2025-03-12T10:57:13Z")
Hi everyone I was diagnosed with aml in May 2018 had a bone marrow transplant in May 2019. Life got pretty much back to normal around March 2020. Fast forward early last year 2024 neuts started declining. November 2024 … --- ## [facial hair](https://patientforum.anthonynolan.org/t/facial-hair/574)
**Author:** [@Ainiti](https://patientforum.anthonynolan.org/u/Ainiti)\ **Replies:** 5\ **Last updated:** [November 5, 2024, 12:27pm UTC](https://patientforum.anthonynolan.org/t/facial-hair/574 "2024-11-05T12:27:45Z")
Hi everyone, I am in my early recovery from BMT, around +80, and I was wondering if any of you has experienced growth of facial hair with the cyclosporine and if you have been recommended any way of reducing them or make… --- ## [Bone marrow post transplant](https://patientforum.anthonynolan.org/t/bone-marrow-post-transplant/622)
**Author:** [@Newj](https://patientforum.anthonynolan.org/u/Newj)\ **Replies:** 2\ **Last updated:** [October 10, 2024, 7:36pm UTC](https://patientforum.anthonynolan.org/t/bone-marrow-post-transplant/622 "2024-10-10T19:36:37Z")
Hi and thanks for the add to the group my husband had a bone marrow transplant beg June , slow progress , one thing that seems to remain is skin pain ! On the torso , hard to define but nothing relieves the sensitivit… --- ## [Auto SCT](https://patientforum.anthonynolan.org/t/auto-sct/620)
**Author:** [@sjc789](https://patientforum.anthonynolan.org/u/sjc789)\ **Replies:** 1\ **Last updated:** [August 16, 2024, 2:33pm UTC](https://patientforum.anthonynolan.org/t/auto-sct/620 "2024-08-16T14:33:51Z")
My husbands Day+47 neutrophils 4, and white bloods 7, we haven’t been guidance on mixing outside with family, not sure what to do --- ## [DLI. Is it worth doing a DLI if Donor Whole Blood 79%, CD3 T cells 97% and CD15. 88%. ?](https://patientforum.anthonynolan.org/t/dli-is-it-worth-doing-a-dli-if-donor-whole-blood-79-cd3-t-cells-97-and-cd15-88/617)
**Author:** [@Will](https://patientforum.anthonynolan.org/u/Will)\ **Replies:** 2\ **Last updated:** [May 28, 2024, 7:18am UTC](https://patientforum.anthonynolan.org/t/dli-is-it-worth-doing-a-dli-if-donor-whole-blood-79-cd3-t-cells-97-and-cd15-88/617 "2024-05-28T07:18:46Z")
I was a relapsed BPCDN patient 7 yrs out of Allo SCT. i have done 7 cycles of VenAza, remission on 3rd cycle. Have been told another Allo SCT too risky and maybe potential for DLI. DLI has been dropped and VenAZA for lif… --- ## [Prehab treatment](https://patientforum.anthonynolan.org/t/prehab-treatment/616)
**Author:** [@SJC](https://patientforum.anthonynolan.org/u/SJC)\ **Replies:** 1\ **Last updated:** [April 25, 2024, 9:35am UTC](https://patientforum.anthonynolan.org/t/prehab-treatment/616 "2024-04-25T09:35:54Z")
Hi, is prehab carried out by the hospital carrying out the SCT or by my husbands haematology? It is something I have read about and sounds like a great tool --- ## [How long from meeting a consultant for stem cell to harvesting of stem cells](https://patientforum.anthonynolan.org/t/how-long-from-meeting-a-consultant-for-stem-cell-to-harvesting-of-stem-cells/614)
**Author:** [@SJC](https://patientforum.anthonynolan.org/u/SJC)\ **Replies:** 2\ **Last updated:** [April 10, 2024, 2:49pm UTC](https://patientforum.anthonynolan.org/t/how-long-from-meeting-a-consultant-for-stem-cell-to-harvesting-of-stem-cells/614 "2024-04-10T14:49:37Z")
We have a meeting in Birmingham QE in May, with the consultant for an Autologous stem cell transplant. My husband is currently having R-GDP. How soon after this meeting is it likely for my husband to have his cells har… --- ## [Jakavi](https://patientforum.anthonynolan.org/t/jakavi/541)
**Author:** [@Su0906](https://patientforum.anthonynolan.org/u/Su0906)\ **Replies:** 14\ **Last updated:** [August 25, 2023, 5:17am UTC](https://patientforum.anthonynolan.org/t/jakavi/541 "2023-08-25T05:17:51Z")
I would be really grateful to hear from anyone who has experienced the use of jakavi. My son has terminal lung gvhd and only 18% lung function left. He’s just start a last hope clinical trial. I’m beginning to hear su… --- ## [Should new childhood vaccinations include HPV vaccination (even if not received as a child)?](https://patientforum.anthonynolan.org/t/should-new-childhood-vaccinations-include-hpv-vaccination-even-if-not-received-as-a-child/589)
**Author:** [@AH67](https://patientforum.anthonynolan.org/u/AH67)\ **Replies:** 4\ **Last updated:** [August 15, 2023, 12:25pm UTC](https://patientforum.anthonynolan.org/t/should-new-childhood-vaccinations-include-hpv-vaccination-even-if-not-received-as-a-child/589 "2023-08-15T12:25:00Z")
We know that post transplant there comes the time when patients need to have their childhood vaccinations again. For some younger patients they will have received the HPV vaccination when a teenager. I have two questio… --- ## [Bone marrow biopsy results](https://patientforum.anthonynolan.org/t/bone-marrow-biopsy-results/594)
**Author:** [@Beaglegirl](https://patientforum.anthonynolan.org/u/Beaglegirl)\ **Replies:** 0\ **Last updated:** [June 21, 2023, 4:13pm UTC](https://patientforum.anthonynolan.org/t/bone-marrow-biopsy-results/594 "2023-06-21T16:13:17Z")
Hi Everyone, It’s me again!!! After the news on Friday that my husband was still in remission we have been in to clinic today and spoken to the consultant and ho has given us some conflicting info. He has told us that th… --- ## [Could this medication be what’s going on?](https://patientforum.anthonynolan.org/t/could-this-medication-be-what-s-going-on/591)
**Author:** [@Beaglegirl](https://patientforum.anthonynolan.org/u/Beaglegirl)\ **Replies:** 1\ **Last updated:** [June 16, 2023, 8:44am UTC](https://patientforum.anthonynolan.org/t/could-this-medication-be-what-s-going-on/591 "2023-06-16T08:44:46Z")
I’m sorry to keep posting but I’m tearing my hair out with worry. Some might have read my post about my husbands levels dropping after his 2nd transplant. I have been looking online I know you shouldn’t but I have read … --- ## [Levels dropped needing a bone marrow biopay](https://patientforum.anthonynolan.org/t/levels-dropped-needing-a-bone-marrow-biopay/590)
**Author:** [@Beaglegirl](https://patientforum.anthonynolan.org/u/Beaglegirl)\ **Replies:** 1\ **Last updated:** [June 15, 2023, 8:36am UTC](https://patientforum.anthonynolan.org/t/levels-dropped-needing-a-bone-marrow-biopay/590 "2023-06-15T08:36:17Z")
Please I need some support. I’m sorry if this upsets anyone but my word is literally falling apart. My husband has had a second transplant Nov 22 and his levels have never been great. M today we thought we would have bet… --- ## [MDS relapse..second transplant?](https://patientforum.anthonynolan.org/t/mds-relapse-second-transplant/427)
**Author:** [@Tallgal](https://patientforum.anthonynolan.org/u/Tallgal)\ **Replies:** 6\ **Last updated:** [May 22, 2023, 6:46pm UTC](https://patientforum.anthonynolan.org/t/mds-relapse-second-transplant/427 "2023-05-22T18:46:51Z")
Hello, My Mum has recently relapsed after over 500 post SCT for high risk MDS. She is very well and fit otherwise. The consultants are saying that Azacitidine would not work as one category of her blasts in her bone ma… --- ## [Autism and stem cell](https://patientforum.anthonynolan.org/t/autism-and-stem-cell/578)
**Author:** [@Kawazi](https://patientforum.anthonynolan.org/u/Kawazi)\ **Replies:** 1\ **Last updated:** [April 17, 2023, 9:49am UTC](https://patientforum.anthonynolan.org/t/autism-and-stem-cell/578 "2023-04-17T09:49:43Z")
I am a mother to a non verbal autistic teenage boy and I would absolutely love for cord stem cell to be tried on him to see if it can improve some of his symptoms. currently the results for phase 3 trails of stem cell fo… --- ## [Big decision and confused](https://patientforum.anthonynolan.org/t/big-decision-and-confused/573)
**Author:** [@JohnShapter](https://patientforum.anthonynolan.org/u/JohnShapter)\ **Replies:** 6\ **Last updated:** [March 18, 2023, 3:48pm UTC](https://patientforum.anthonynolan.org/t/big-decision-and-confused/573 "2023-03-18T15:48:06Z")
I am just about to have a final third round of chemo before SCT which will be in a few weeks time at a different hospital. Following the secound round I was 100% in remission, but an flt3 marker indicates I will relapse … --- ## [Covid Vaccination Post BMT](https://patientforum.anthonynolan.org/t/covid-vaccination-post-bmt/572)
**Author:** [@Atraynor](https://patientforum.anthonynolan.org/u/Atraynor)\ **Replies:** 2\ **Last updated:** [March 13, 2023, 10:27am UTC](https://patientforum.anthonynolan.org/t/covid-vaccination-post-bmt/572 "2023-03-13T10:27:13Z")
Morning, I am getting conflicting advice regarding my second covid vaccine post transplant. My consultant is saying to get the second dose 3/4 weeks after the first dose, however when I speak to 119, covid helpline, they… --- ## [Day +15 no neutrophils](https://patientforum.anthonynolan.org/t/day-15-no-neutrophils/570)
**Author:** [@LesleyB](https://patientforum.anthonynolan.org/u/LesleyB)\ **Replies:** 2\ **Last updated:** [March 2, 2023, 7:02pm UTC](https://patientforum.anthonynolan.org/t/day-15-no-neutrophils/570 "2023-03-02T19:02:12Z")
My partner (47yo) has AML. He had his transplant on 14th February. All seemed fine and his neutrophils were 0.01 on day +11 but they have not moved since then. He does have a bit of an infection that is slowly climbing (… --- ## [GVHD](https://patientforum.anthonynolan.org/t/gvhd/501)
**Author:** [@lynsey\_gough85](https://patientforum.anthonynolan.org/u/lynsey_gough85)\ **Replies:** 9\ **Last updated:** [January 28, 2023, 5:22pm UTC](https://patientforum.anthonynolan.org/t/gvhd/501 "2023-01-28T17:22:17Z")
Hi everyone x I’m really struggling at the moment with GVHD and in a little bit of a panic x so I am 2 years post transplant which I am so grateful for but I still have horrendous GVHD in my scalp eyes and questionable … --- ## [Shingles vaccine - Shingrix](https://patientforum.anthonynolan.org/t/shingles-vaccine-shingrix/504)
**Author:** [@GailW](https://patientforum.anthonynolan.org/u/GailW)\ **Replies:** 10\ **Last updated:** [October 31, 2022, 8:17pm UTC](https://patientforum.anthonynolan.org/t/shingles-vaccine-shingrix/504 "2022-10-31T20:17:39Z")
As my husband has just turned 70 his GP offered the shingles vaccine. I see that there is a non live vaccine, Shingrix, available since September 1st in the UK. He is just 4 years post transplant on all the meds he lef… --- ## [Childhood vaccinations](https://patientforum.anthonynolan.org/t/childhood-vaccinations/484)
**Author:** [@Laulau1](https://patientforum.anthonynolan.org/u/Laulau1)\ **Replies:** 15\ **Last updated:** [October 22, 2022, 8:18am UTC](https://patientforum.anthonynolan.org/t/childhood-vaccinations/484 "2022-10-22T08:18:11Z")
Hi I am coming up to point 7 months where my vaccination due. I have been told this will be non live vaccines from childhood. I’ve decided to wait till after covid 2nd vaccination to have these. For people in last few… --- ## [Sorafenib Use for AML FLT3](https://patientforum.anthonynolan.org/t/sorafenib-use-for-aml-flt3/552)
**Author:** [@KeepTheFaith](https://patientforum.anthonynolan.org/u/KeepTheFaith)\ **Replies:** 2\ **Last updated:** [October 17, 2022, 10:49pm UTC](https://patientforum.anthonynolan.org/t/sorafenib-use-for-aml-flt3/552 "2022-10-17T22:49:19Z")
Hi I am currently supporting my partner who is around +150 days. My Partner has been out on Sorafenib. I believe it is not a licensed maintenance treatment yet for AML FLT3 but limited trials have shown it to show pos… --- ## [Ruxolitinib](https://patientforum.anthonynolan.org/t/ruxolitinib/506)
**Author:** [@GailW](https://patientforum.anthonynolan.org/u/GailW)\ **Replies:** 12\ **Last updated:** [October 15, 2022, 10:26am UTC](https://patientforum.anthonynolan.org/t/ruxolitinib/506 "2022-10-15T10:26:06Z")
Since my husbands transplant (January 2018) he left hospital with acute GvHD and then developed chronic GvHD. He has been on fortnightly ECP since August 2018 when he developed grade IV (very severe) oral GVHD. At the fi… --- ## [B K Virus](https://patientforum.anthonynolan.org/t/b-k-virus/540)
**Author:** [@Babs](https://patientforum.anthonynolan.org/u/Babs)\ **Replies:** 3\ **Last updated:** [August 4, 2022, 5:01pm UTC](https://patientforum.anthonynolan.org/t/b-k-virus/540 "2022-08-04T17:01:08Z")
Hi. Does anyone have advice re B K Virus after transplant? My daughter has had this for 4 weeks and it is very painful and is passing urine with blood frequently. She has been told there is no proven treatment, is hav… --- ## [Relapsed AML after 17yr post stem cell transplant](https://patientforum.anthonynolan.org/t/relapsed-aml-after-17yr-post-stem-cell-transplant/521)
**Author:** [@Beaglegirl](https://patientforum.anthonynolan.org/u/Beaglegirl)\ **Replies:** 8\ **Last updated:** [July 29, 2022, 6:55am UTC](https://patientforum.anthonynolan.org/t/relapsed-aml-after-17yr-post-stem-cell-transplant/521 "2022-07-29T06:55:16Z")
My husband had a unrelated stem cell transplant in 2005 at 34yr for MDS -AML. This week we have found out that he has relapsed with AML so now needing more treatment and another stem cell transplant. Is there anyone who … --- ## [Posponed stem cell transplant back on](https://patientforum.anthonynolan.org/t/posponed-stem-cell-transplant-back-on/537)
**Author:** [@popcorn28](https://patientforum.anthonynolan.org/u/popcorn28)\ **Replies:** 3\ **Last updated:** [July 21, 2022, 9:00am UTC](https://patientforum.anthonynolan.org/t/posponed-stem-cell-transplant-back-on/537 "2022-07-21T09:00:19Z")
Hi after a rocky start my husbands allogenic stem is back on and he’s being prepped in the next week can anyone who’s been through this give me a clear understanding of what will happen and anyone who can share what kept… --- ## [Visiting a loved one in isolation](https://patientforum.anthonynolan.org/t/visiting-a-loved-one-in-isolation/535)
**Author:** [@popcorn28](https://patientforum.anthonynolan.org/u/popcorn28)\ **Replies:** 5\ **Last updated:** [July 11, 2022, 11:27am UTC](https://patientforum.anthonynolan.org/t/visiting-a-loved-one-in-isolation/535 "2022-07-11T11:27:57Z")
HELLO I no every transplant unit will be very different but is there anyone that has visited some one in isolation in the manchester MRI unit who could advise on visiting how often, how long,how many can visit at any one… --- ## [Posponed transplant](https://patientforum.anthonynolan.org/t/posponed-transplant/534)
**Author:** [@popcorn28](https://patientforum.anthonynolan.org/u/popcorn28)\ **Replies:** 3\ **Last updated:** [July 8, 2022, 8:17am UTC](https://patientforum.anthonynolan.org/t/posponed-transplant/534 "2022-07-08T08:17:16Z")
Hi my husband has just had his allogenic transplant posponed due to donor related medical issues she may still be able to donate but we no he also has two matches in Germany has anyone on here been posponed and how long … [Next page](https://patientforum.anthonynolan.org/c/general-advice/7.md?page=1)