# General advice **URL:** https://patientforum.anthonynolan.org/c/general-advice/7.md?page=1 [Latest](https://patientforum.anthonynolan.org/latest.md) · [Categories](https://patientforum.anthonynolan.org/categories.md) · [Tags](https://patientforum.anthonynolan.org/tags.md) **Page:** 2 --- ## [Frightened about reults](https://patientforum.anthonynolan.org/t/frightened-about-reults/533)
**Author:** [@Beaglegirl](https://patientforum.anthonynolan.org/u/Beaglegirl)\ **Replies:** 3\ **Last updated:** [July 7, 2022, 8:41am UTC](https://patientforum.anthonynolan.org/t/frightened-about-reults/533 "2022-07-07T08:41:52Z")
Really need some help my world is falling apart ? The CNS has come in to see my husband today and basically said they don’t know whether it’s the original Leukaemia or secondary leukaemia it’s really rare to relapse afte… --- ## [MMR Live Jab](https://patientforum.anthonynolan.org/t/mmr-live-jab/525)
**Author:** [@Manders](https://patientforum.anthonynolan.org/u/Manders)\ **Replies:** 9\ **Last updated:** [June 29, 2022, 12:42pm UTC](https://patientforum.anthonynolan.org/t/mmr-live-jab/525 "2022-06-29T12:42:55Z")
Hi All, thanks for the add. I have already asked a close friend who has been through BMT for the same reason, but I am worried about my hubby getting his MMR jab soon as its a live vaccine. He has had all sorts of viral … --- ## [Help](https://patientforum.anthonynolan.org/t/help/529)
**Author:** [@Beaglegirl](https://patientforum.anthonynolan.org/u/Beaglegirl)\ **Replies:** 5\ **Last updated:** [May 25, 2022, 1:52pm UTC](https://patientforum.anthonynolan.org/t/help/529 "2022-05-25T13:52:48Z")
I’ve already posted here before but just to recap My husband has relapsed with AML after 16.5 post bmt. However the consultant has said that his DNA has given the donor cells leukaemia? Apparently it’s the rarest thing t… --- ## [My husband is waiting for his second transplant](https://patientforum.anthonynolan.org/t/my-husband-is-waiting-for-his-second-transplant/522)
**Author:** [@Moomee](https://patientforum.anthonynolan.org/u/Moomee)\ **Replies:** 16\ **Last updated:** [April 26, 2022, 12:16pm UTC](https://patientforum.anthonynolan.org/t/my-husband-is-waiting-for-his-second-transplant/522 "2022-04-26T12:16:54Z")
My husband was diagnosed with Non-Hodgkins Lymphoma May 2020. After various failed treatments and immediate relapses, he eventually got into remission November 2021 and an unrelated 9/10 donor match was found for an allo… --- ## [Dropping chimerism](https://patientforum.anthonynolan.org/t/dropping-chimerism/511)
**Author:** [@Moirplace](https://patientforum.anthonynolan.org/u/Moirplace)\ **Replies:** 3\ **Last updated:** [January 12, 2022, 6:21pm UTC](https://patientforum.anthonynolan.org/t/dropping-chimerism/511 "2022-01-12T18:21:37Z")
Hi looking for some advice from anyone who has experience of dropping chimerism 3/4 years post transplant?. My daughter had a BMT to treat refractory ALL in 2017. Although her bone marrow always been a bit fragile. Mi… --- ## [Live childhood vaccinations when still immunosuppressed](https://patientforum.anthonynolan.org/t/live-childhood-vaccinations-when-still-immunosuppressed/489)
**Author:** [@GailW](https://patientforum.anthonynolan.org/u/GailW)\ **Replies:** 3\ **Last updated:** [December 1, 2021, 1:41pm UTC](https://patientforum.anthonynolan.org/t/live-childhood-vaccinations-when-still-immunosuppressed/489 "2021-12-01T13:41:33Z")
My husband is a few months over 3 years post stem call transplant. He has had acute then chronic GVHD ever since. He is currently on all of the medications he left hospital on, including ciclosporin 125mgs bd and is once… --- ## [Possible Skin GVHD?](https://patientforum.anthonynolan.org/t/possible-skin-gvhd/498)
**Author:** [@Lucyh1234](https://patientforum.anthonynolan.org/u/Lucyh1234)\ **Replies:** 11\ **Last updated:** [August 23, 2021, 12:02pm UTC](https://patientforum.anthonynolan.org/t/possible-skin-gvhd/498 "2021-08-23T12:02:52Z")
I have been suffering with itchy skin for about 2 months now. It started underneath my armpits and my doctor said it was ezcema. I never felt like my skin was dry though. Just slightly pink and itchy. Now it is all over… --- ## [Covid advice from 19th July](https://patientforum.anthonynolan.org/t/covid-advice-from-19th-july/496)
**Author:** [@JennyD](https://patientforum.anthonynolan.org/u/JennyD)\ **Replies:** 3\ **Last updated:** [July 18, 2021, 8:07am UTC](https://patientforum.anthonynolan.org/t/covid-advice-from-19th-july/496 "2021-07-18T08:07:22Z")
Hi everyone I am 9 months post transplant for AML and doing OK generally. I came off my immunosuppressants a few weeks ago after pretty bad GVHD but I am still taking Gilteritinib as immunotherapy and I am likely to be … --- ## [Vaccination covid](https://patientforum.anthonynolan.org/t/vaccination-covid/478)
**Author:** [@Laulau1](https://patientforum.anthonynolan.org/u/Laulau1)\ **Replies:** 33\ **Last updated:** [May 4, 2021, 8:01am UTC](https://patientforum.anthonynolan.org/t/vaccination-covid/478 "2021-05-04T08:01:59Z")
Hi has anyone been invited to have covid vaccine? I’m 5 months past donor stem cell transplant and was called this week about having it done at my hospital. --- ## [Worry about it all!](https://patientforum.anthonynolan.org/t/worry-about-it-all/406)
**Author:** [@MotherAA](https://patientforum.anthonynolan.org/u/MotherAA)\ **Replies:** 22\ **Last updated:** [April 14, 2021, 8:49pm UTC](https://patientforum.anthonynolan.org/t/worry-about-it-all/406 "2021-04-14T20:49:58Z")
I am a parent of a teen about to undergo BMT. We have, over the last few months, settled into a life of blood tests, transfusions, appointments and of course lots of admissions. So I am really grateful for the chance of… --- ## [Neutropenic sepsis](https://patientforum.anthonynolan.org/t/neutropenic-sepsis/452)
**Author:** [@Tom\_AnthonyNolan](https://patientforum.anthonynolan.org/u/Tom_AnthonyNolan)\ **Replies:** 11\ **Last updated:** [April 2, 2021, 2:27pm UTC](https://patientforum.anthonynolan.org/t/neutropenic-sepsis/452 "2021-04-02T14:27:05Z")
In the current coronavirus (COVID-19) pandemic, people are still receiving and recovering from stem cell transplants. Neutropenic sepsis remains one of the main risks during recovery. This can occur if your neutrophils … --- ## [Weight](https://patientforum.anthonynolan.org/t/weight/481)
**Author:** [@Laulau1](https://patientforum.anthonynolan.org/u/Laulau1)\ **Replies:** 14\ **Last updated:** [February 16, 2021, 1:46pm UTC](https://patientforum.anthonynolan.org/t/weight/481 "2021-02-16T13:46:18Z")
Hi guys I hope you are all doing okay. I wondered if anyone has advice to get weight back up in a healthy way using healthy foods? --- ## [Vaccination for those we live with](https://patientforum.anthonynolan.org/t/vaccination-for-those-we-live-with/482)
**Author:** [@Laulau1](https://patientforum.anthonynolan.org/u/Laulau1)\ **Replies:** 3\ **Last updated:** [February 15, 2021, 8:40am UTC](https://patientforum.anthonynolan.org/t/vaccination-for-those-we-live-with/482 "2021-02-15T08:40:15Z")
Hi Does anyone know if the person we live with can have the covid vaccination? I’ve had my vaccine but still feel extremely vulnerable almost 6 months post transplant as my husband who lives with me hasn’t had his vacci… --- ## [Covid Vaccines](https://patientforum.anthonynolan.org/t/covid-vaccines/469)
**Author:** [@AH67](https://patientforum.anthonynolan.org/u/AH67)\ **Replies:** 6\ **Last updated:** [January 20, 2021, 8:13am UTC](https://patientforum.anthonynolan.org/t/covid-vaccines/469 "2021-01-20T08:13:45Z")
I was wondering if Anthony Nolan medical team knows what the position will be with the current vaccines that look like they will shortly be available. Will they: be available to those pre-transplant, and subsequently … --- ## [Sore mouth](https://patientforum.anthonynolan.org/t/sore-mouth/472)
**Author:** [@Laulau1](https://patientforum.anthonynolan.org/u/Laulau1)\ **Replies:** 5\ **Last updated:** [January 7, 2021, 8:57am UTC](https://patientforum.anthonynolan.org/t/sore-mouth/472 "2021-01-07T08:57:09Z")
Hi I’ve recently experienced a sore mouth I think I have ulcers inside my mouth which makes eating quite painful. I’ve been given sodium chloride mouth wash, gelclair. Is there anything else anyone found particularly us… --- ## [Families and friends of Patients - Want to Help](https://patientforum.anthonynolan.org/t/families-and-friends-of-patients-want-to-help/473)
**Author:** [@AH67](https://patientforum.anthonynolan.org/u/AH67)\ **Replies:** 2\ **Last updated:** [December 31, 2020, 7:09pm UTC](https://patientforum.anthonynolan.org/t/families-and-friends-of-patients-want-to-help/473 "2020-12-31T19:09:50Z")
Hi all, It’s New Year’s Eve and resolutions will be coming to the forefront of our minds. It often feels that as a carer, friend or family member that there is relatively little that you can do for your loved one going… --- ## [Physical activity after transplant](https://patientforum.anthonynolan.org/t/physical-activity-after-transplant/466)
**Author:** [@chelle\_16](https://patientforum.anthonynolan.org/u/chelle_16)\ **Replies:** 3\ **Last updated:** [September 30, 2020, 6:48pm UTC](https://patientforum.anthonynolan.org/t/physical-activity-after-transplant/466 "2020-09-30T18:48:25Z")
Hello I recently saw Anthony Nolan’s YouTube video on ‘Physical Activity After Transplant’. It is very helpful and informative. It also provides alot of reassurance for those experiencing challenges. … --- ## [CFS post Allo-SCT](https://patientforum.anthonynolan.org/t/cfs-post-allo-sct/465)
**Author:** [@chelle\_16](https://patientforum.anthonynolan.org/u/chelle_16)\ **Replies:** 0\ **Last updated:** [August 27, 2020, 11:18am UTC](https://patientforum.anthonynolan.org/t/cfs-post-allo-sct/465 "2020-08-27T11:18:56Z")
Hello everyone I’m writting today as a patient with a question and an Online Community Champion. I’m wondering if anyone has experienced Chronic Fatigue Syndrome like symptoms or challenges post SCT? I had my Unrelate… --- ## [Sleep](https://patientforum.anthonynolan.org/t/sleep/458)
**Author:** [@chelle\_16](https://patientforum.anthonynolan.org/u/chelle_16)\ **Replies:** 3\ **Last updated:** [July 28, 2020, 7:17am UTC](https://patientforum.anthonynolan.org/t/sleep/458 "2020-07-28T07:17:43Z")
Hello Everyone How are you all? I recently had a few days of bad sleep and wondered how you all find SLEEP in general and with pending changes to shielding? Is challenges with sleep something you experience? Have you… --- ## [My son Henry is heading over for bone marrow transplant soon](https://patientforum.anthonynolan.org/t/my-son-henry-is-heading-over-for-bone-marrow-transplant-soon/447)
**Author:** [@JulieMcClements](https://patientforum.anthonynolan.org/u/JulieMcClements)\ **Replies:** 3\ **Last updated:** [June 16, 2020, 9:09am UTC](https://patientforum.anthonynolan.org/t/my-son-henry-is-heading-over-for-bone-marrow-transplant-soon/447 "2020-06-16T09:09:48Z")
Hey… hope any one reading this is safe and well. My son Henry, who is 21 months old, was diagnosed with JMML and NF1 late last year and we are heading over for his bone marrow transplant on 19th April in Bristol. There … --- ## [Shielding Letter](https://patientforum.anthonynolan.org/t/shielding-letter/451)
**Author:** [@SueP](https://patientforum.anthonynolan.org/u/SueP)\ **Replies:** 3\ **Last updated:** [May 30, 2020, 3:57pm UTC](https://patientforum.anthonynolan.org/t/shielding-letter/451 "2020-05-30T15:57:09Z")
Has anyone else had an NHS letter recently advising them to ‘shield’? I received one last week. It’s six and a half years since my cord blood donor transplant so this is contrary to the Anthony Nolan guidance and also th… --- ## [Should my husband have a stem cell transplant?](https://patientforum.anthonynolan.org/t/should-my-husband-have-a-stem-cell-transplant/331)
**Author:** [@Cath](https://patientforum.anthonynolan.org/u/Cath)\ **Replies:** 13\ **Last updated:** [May 22, 2020, 1:23pm UTC](https://patientforum.anthonynolan.org/t/should-my-husband-have-a-stem-cell-transplant/331 "2020-05-22T13:23:35Z")
My husband (59 years old) has been recently diagnosed with myelofibrosis and has been given a life expectancy of two and a half years, much shorter than we thought. He is well and active at the moment. His symptoms are… --- ## [COVID Emergency Patient Fund](https://patientforum.anthonynolan.org/t/covid-emergency-patient-fund/449)
**Author:** [@Tom\_AnthonyNolan](https://patientforum.anthonynolan.org/u/Tom_AnthonyNolan)\ **Replies:** 0\ **Last updated:** [April 21, 2020, 12:39pm UTC](https://patientforum.anthonynolan.org/t/covid-emergency-patient-fund/449 "2020-04-21T12:39:13Z")
Have you had to stop working to protect yourself from coronavirus? Or are you spending more on food, technology or cleaning products while ‘shielding’ in isolation? Do you have to pay more to travel further for y… --- ## [weight loss](https://patientforum.anthonynolan.org/t/weight-loss/443)
**Author:** [@patsyb](https://patientforum.anthonynolan.org/u/patsyb)\ **Replies:** 5\ **Last updated:** [March 4, 2020, 7:29pm UTC](https://patientforum.anthonynolan.org/t/weight-loss/443 "2020-03-04T19:29:03Z")
hi im 130 days post transplant and losing weight is this normal i am eating gairly well --- ## [possible lymphoblastic Lymphoma](https://patientforum.anthonynolan.org/t/possible-lymphoblastic-lymphoma/440)
**Author:** [@Dannii](https://patientforum.anthonynolan.org/u/Dannii)\ **Replies:** 1\ **Last updated:** [January 24, 2020, 4:47pm UTC](https://patientforum.anthonynolan.org/t/possible-lymphoblastic-lymphoma/440 "2020-01-24T16:47:16Z")
Hi all I was on here last week regarding my brother, Today is his 1 year anniversary and today he’s had his bone marrow checked. Following a CT scan last week the docs are sending him for a biopsy and PET scan due to ei… --- ## [1 year post transplant and CT scan](https://patientforum.anthonynolan.org/t/1-year-post-transplant-and-ct-scan/439)
**Author:** [@Dannii](https://patientforum.anthonynolan.org/u/Dannii)\ **Replies:** 2\ **Last updated:** [January 22, 2020, 10:54pm UTC](https://patientforum.anthonynolan.org/t/1-year-post-transplant-and-ct-scan/439 "2020-01-22T22:54:10Z")
Hi all My brother will be 1 year post stem cell transplant (Haplo) in 7 days. He was taken into hospital with suspected shingles, all test results came back good and shingles ruled out. He has got GVHD of the sin and mo… --- ## [NATIONAL GVHD DAY | 15 NOVEMBER 2019, MANCHESTER](https://patientforum.anthonynolan.org/t/national-gvhd-day-15-november-2019-manchester/429)
**Author:** [@Maddy\_AnthonyNolan](https://patientforum.anthonynolan.org/u/Maddy_AnthonyNolan)\ **Replies:** 0\ **Last updated:** [August 21, 2019, 8:49am UTC](https://patientforum.anthonynolan.org/t/national-gvhd-day-15-november-2019-manchester/429 "2019-08-21T08:49:54Z")
Hello, UPDATE: Our 2nd GvHD Day has been rescheduled to Friday 15th November. The GvHD Day is a great opportunity to meet other patients with similar experience and receive advice from the experts. On the agenda, we w… --- ## [Hair thin and coming out still 200 days post transplant](https://patientforum.anthonynolan.org/t/hair-thin-and-coming-out-still-200-days-post-transplant/426)
**Author:** [@Lizzietheliz](https://patientforum.anthonynolan.org/u/Lizzietheliz)\ **Replies:** 2\ **Last updated:** [July 30, 2019, 4:09pm UTC](https://patientforum.anthonynolan.org/t/hair-thin-and-coming-out-still-200-days-post-transplant/426 "2019-07-30T16:09:34Z")
Hi, since my transplant last January 2019 my hair just is barely growing in and if I touch it actually comes out? I have no eyebrows although to begin with they grew back lovely, then disappeared. I have skin gvhd and af… --- ## [Taste](https://patientforum.anthonynolan.org/t/taste/420)
**Author:** [@Nigel\_griffiths](https://patientforum.anthonynolan.org/u/Nigel_griffiths)\ **Replies:** 2\ **Last updated:** [June 12, 2019, 12:17pm UTC](https://patientforum.anthonynolan.org/t/taste/420 "2019-06-12T12:17:41Z")
I know this will sound weird but post transpl ant has any one any experience of altered food tastes.pre sct I didn’t eat spicy foods but since I have begun eating all sorts.i spoke to my donor to see if he was a curry fa… --- ## [Stem cell transplant](https://patientforum.anthonynolan.org/t/stem-cell-transplant/417)
**Author:** [@Ndg](https://patientforum.anthonynolan.org/u/Ndg)\ **Replies:** 2\ **Last updated:** [May 2, 2019, 5:31pm UTC](https://patientforum.anthonynolan.org/t/stem-cell-transplant/417 "2019-05-02T17:31:57Z")
Hi I’m new to this forum, today I was given a second chance I received a stem cell donation I’m so grateful! Any advice about what to expect and how to deal with side effects from now onwards! ? [Previous page](https://patientforum.anthonynolan.org/c/general-advice/7.md) [Next page](https://patientforum.anthonynolan.org/c/general-advice/7.md?page=2)