# Pre-transplant **URL:** https://patientforum.anthonynolan.org/c/pre-transplant/8.md [Latest](https://patientforum.anthonynolan.org/latest.md) · [Categories](https://patientforum.anthonynolan.org/categories.md) · [Tags](https://patientforum.anthonynolan.org/tags.md) --- ## [Aml sct for senior](https://patientforum.anthonynolan.org/t/aml-sct-for-senior/842)
**Author:** [@vivsheppard](https://patientforum.anthonynolan.org/u/vivsheppard)\ **Replies:** 6\ **Last updated:** [October 24, 2026, 8:34am UTC](https://patientforum.anthonynolan.org/t/aml-sct-for-senior/842 "2026-10-24T08:34:23Z")
Hi, I am Vivien, I was diagnosed with AML in July. Was in remission after first round of chemo and now had 2 rounds. Been to see consultant at Cambridge who recommends SCT. I am quite anxious of how rigourous this will b… --- ## [Pre Transplant Journey ](https://patientforum.anthonynolan.org/t/pre-transplant-journey/784)
**Author:** [@SimonW](https://patientforum.anthonynolan.org/u/SimonW)\ **Replies:** 4\ **Last updated:** [May 11, 2026, 6:54pm UTC](https://patientforum.anthonynolan.org/t/pre-transplant-journey/784 "2026-05-11T18:54:52Z")
Hi Everyone I was diagnosed with a rare form of CLL just over a year ago aged 57 and have been under treatment that have brought it back under control. However the only option for me is for a non related stem cell trans… --- ## [Sibling Donor living in Germany](https://patientforum.anthonynolan.org/t/sibling-donor-living-in-germany/633)
**Author:** [@MakingDo](https://patientforum.anthonynolan.org/u/MakingDo)\ **Replies:** 1\ **Last updated:** [April 21, 2026, 9:36am UTC](https://patientforum.anthonynolan.org/t/sibling-donor-living-in-germany/633 "2026-04-21T09:36:28Z")
Hi, My adult daughter requires a pre-emptive stem cell transplant (Gata2 deficiency) and my adult son who lives in Germany is being asked to be a donor. He was previously told (last year) that he would not be their choi… --- ## [10 year old due a bone marrow transplant](https://patientforum.anthonynolan.org/t/10-year-old-due-a-bone-marrow-transplant/631)
**Author:** [@Samantha92](https://patientforum.anthonynolan.org/u/Samantha92)\ **Replies:** 5\ **Last updated:** [April 16, 2026, 4:33pm UTC](https://patientforum.anthonynolan.org/t/10-year-old-due-a-bone-marrow-transplant/631 "2026-04-16T16:33:25Z")
My son 10years old was diagnosed with lysinuric protein intolerance (LPI) a very rare multi organ metabolic disease in August 2024 , in which he had a gastrostomy placed and was put on a protein restricted diet and medic… --- ## [Anyone over 60 made a full recovery?](https://patientforum.anthonynolan.org/t/anyone-over-60-made-a-full-recovery/630)
**Author:** [@Aspro354](https://patientforum.anthonynolan.org/u/Aspro354)\ **Replies:** 2\ **Last updated:** [February 20, 2026, 6:27pm UTC](https://patientforum.anthonynolan.org/t/anyone-over-60-made-a-full-recovery/630 "2026-02-20T18:27:05Z")
Hi, I’m paul, thank you for accepting me to the forum. I have recently been diagnosed with myelofibrosis and am currently being tested for a stem cell transplant, I am almost 62 years old and just wondered if anyone my … --- ## [More delays](https://patientforum.anthonynolan.org/t/more-delays/618)
**Author:** [@KatyB](https://patientforum.anthonynolan.org/u/KatyB)\ **Replies:** 4\ **Last updated:** [October 15, 2024, 5:32am UTC](https://patientforum.anthonynolan.org/t/more-delays/618 "2024-10-15T05:32:05Z")
Hi all,I posted a while ago about having to undergo a second transplant for a relapse in AML after 6yrs.I have a long journey to get to this point where I was supposed to be in hospital today to start conditioning,howeve… --- ## [Kidney levels for Autogulus Stem Cell Transplant](https://patientforum.anthonynolan.org/t/kidney-levels-for-autogulus-stem-cell-transplant/615)
**Author:** [@SJC](https://patientforum.anthonynolan.org/u/SJC)\ **Replies:** 2\ **Last updated:** [April 24, 2024, 4:39pm UTC](https://patientforum.anthonynolan.org/t/kidney-levels-for-autogulus-stem-cell-transplant/615 "2024-04-24T16:39:01Z")
Does anyone know if there is a minimum kidney eGFR that my husband would need to be at before the hospital would proceed with the Stem Cell Transplant. He’s currently at 52 stage 3 but went down to 44 3B. He has been ha… --- ## [Do you live with Sickle Cell Disease or Thalassemia?](https://patientforum.anthonynolan.org/t/do-you-live-with-sickle-cell-disease-or-thalassemia/595)
**Author:** [@Liam\_at\_AnthonyNolan](https://patientforum.anthonynolan.org/u/Liam_at_AnthonyNolan)\ **Replies:** 0\ **Last updated:** [June 23, 2023, 9:53am UTC](https://patientforum.anthonynolan.org/t/do-you-live-with-sickle-cell-disease-or-thalassemia/595 "2023-06-23T09:53:53Z")
If you have experience of Sickle Cell or Thalassemia, or you’re the partner or carer of someone who has, we’re keen to hear from you. NICE (the National Institute for Health and Care Excellence) is currently reviewing r… --- ## [Seattle Trial](https://patientforum.anthonynolan.org/t/seattle-trial/593)
**Author:** [@Adrian62](https://patientforum.anthonynolan.org/u/Adrian62)\ **Replies:** 1\ **Last updated:** [June 21, 2023, 10:49am UTC](https://patientforum.anthonynolan.org/t/seattle-trial/593 "2023-06-21T10:49:59Z")
Iam currently waiting a SCT @ Notts City Hospital,and have been told it will be the Seattle type whereby Iam in for 7days and then frequent checks as an Outpatient. Because I have a unique anomaly with my blood I will n… --- ## [Sickle cell disease & stem cell transplant](https://patientforum.anthonynolan.org/t/sickle-cell-disease-stem-cell-transplant/592)
**Author:** [@Liam\_at\_AnthonyNolan](https://patientforum.anthonynolan.org/u/Liam_at_AnthonyNolan)\ **Replies:** 0\ **Last updated:** [June 19, 2023, 8:50am UTC](https://patientforum.anthonynolan.org/t/sickle-cell-disease-stem-cell-transplant/592 "2023-06-19T08:50:58Z")
For anyone with sickle cell disease, a stem cell transplant may now give hope of a cure. If you have been told that a stem cell transplant may be a treatment option for you, you might have lots of questions. There is lo… --- ## [A two month old baby needing transplant](https://patientforum.anthonynolan.org/t/a-two-month-old-baby-needing-transplant/583)
**Author:** [@MaggieMoo](https://patientforum.anthonynolan.org/u/MaggieMoo)\ **Replies:** 5\ **Last updated:** [May 29, 2023, 3:28pm UTC](https://patientforum.anthonynolan.org/t/a-two-month-old-baby-needing-transplant/583 "2023-05-29T15:28:56Z")
Hi all, my little 2 month old baby needs a bone marrow transplant for genetic bone marrow failure. Has anyone been through this with an infant? What helped you get through to recovery? How did you deal with teething, Cr… --- ## [Long term prophylactic antibiotic therapy](https://patientforum.anthonynolan.org/t/long-term-prophylactic-antibiotic-therapy/587)
**Author:** [@Meerkat](https://patientforum.anthonynolan.org/u/Meerkat)\ **Replies:** 0\ **Last updated:** [May 26, 2023, 6:46am UTC](https://patientforum.anthonynolan.org/t/long-term-prophylactic-antibiotic-therapy/587 "2023-05-26T06:46:11Z")
Hi all This is following on from a recent query about lifetime antibiotic therapy after a SCT, by a mum of a young baby requiring SCT. I thought it would be interesting to gauge experiences of people who have stopped th… --- ## [Blood counts following radiotherapy to shrink spleenMyelofibrosis](https://patientforum.anthonynolan.org/t/blood-counts-following-radiotherapy-to-shrink-spleenmyelofibrosis/564)
**Author:** [@Scaredy\_cat](https://patientforum.anthonynolan.org/u/Scaredy_cat)\ **Replies:** 2\ **Last updated:** [January 16, 2023, 1:55pm UTC](https://patientforum.anthonynolan.org/t/blood-counts-following-radiotherapy-to-shrink-spleenmyelofibrosis/564 "2023-01-16T13:55:05Z")
I have myelofibrosis and am being admitted shortly for chemo conditioning and then sct. Before that I have to have some radiotherapy to shrink my enlarged spleen (6 x 1 gy). Has amyone experienced this. They say my bl… --- ## [G-CSF injections interaction with existing medication](https://patientforum.anthonynolan.org/t/g-csf-injections-interaction-with-existing-medication/554)
**Author:** [@Percy](https://patientforum.anthonynolan.org/u/Percy)\ **Replies:** 1\ **Last updated:** [November 11, 2022, 11:11am UTC](https://patientforum.anthonynolan.org/t/g-csf-injections-interaction-with-existing-medication/554 "2022-11-11T11:11:53Z")
Hi, Starting G-CSF injections tomorrow as a related donor. Just wanted to check that it will be safe for my recipient and myself to be taking the following combination. I have requested confirmation from my hospital but… --- ## [2nd Transplant tomorrow](https://patientforum.anthonynolan.org/t/2nd-transplant-tomorrow/555)
**Author:** [@Beaglegirl](https://patientforum.anthonynolan.org/u/Beaglegirl)\ **Replies:** 2\ **Last updated:** [November 8, 2022, 9:49pm UTC](https://patientforum.anthonynolan.org/t/2nd-transplant-tomorrow/555 "2022-11-08T21:49:40Z")
Getting very anxious and worried about my husbands 2nd transplant tomorrow. He’s been poorly after his first lot of Campath. The Doctor mentioned yesterday that it might be donor derived leukaemia now and not a relapse o… --- ## [Awaiting 2nd Transplant](https://patientforum.anthonynolan.org/t/awaiting-2nd-transplant/546)
**Author:** [@Beaglegirl](https://patientforum.anthonynolan.org/u/Beaglegirl)\ **Replies:** 3\ **Last updated:** [September 27, 2022, 9:03am UTC](https://patientforum.anthonynolan.org/t/awaiting-2nd-transplant/546 "2022-09-27T09:03:27Z")
Hi, It’s been a long time since I posted as my husband finally got remission on his 3rd round of chemo. We have been to see about his second transplant after 16.5 yrs of being in remission from AML but the statistics are… --- ## [Pre transplant](https://patientforum.anthonynolan.org/t/pre-transplant/544)
**Author:** [@Scottish](https://patientforum.anthonynolan.org/u/Scottish)\ **Replies:** 1\ **Last updated:** [September 8, 2022, 3:02pm UTC](https://patientforum.anthonynolan.org/t/pre-transplant/544 "2022-09-08T15:02:09Z")
Hi has anyone experienced stem cell transplant at QE recently? how was the care, food, visiting etc? --- ## [I am awaiting a transplant, hopefully Oct/Nov 2022.I have a weeks holiday booked 18th September 2022](https://patientforum.anthonynolan.org/t/i-am-awaiting-a-transplant-hopefully-oct-nov-2022-i-have-a-weeks-holiday-booked-18th-september-2022/538)
**Author:** [@Malkyboy](https://patientforum.anthonynolan.org/u/Malkyboy)\ **Replies:** 2\ **Last updated:** [July 25, 2022, 7:43am UTC](https://patientforum.anthonynolan.org/t/i-am-awaiting-a-transplant-hopefully-oct-nov-2022-i-have-a-weeks-holiday-booked-18th-september-2022/538 "2022-07-25T07:43:05Z")
I have a weeks holiday booked to Lanzarote 18th September, in view of the rising covid numbers would it be prudent to postpone this holiday until after transplant? --- ## [Stem cell transplant with high blast count](https://patientforum.anthonynolan.org/t/stem-cell-transplant-with-high-blast-count/519)
**Author:** [@Alyssary](https://patientforum.anthonynolan.org/u/Alyssary)\ **Replies:** 2\ **Last updated:** [March 19, 2022, 4:56pm UTC](https://patientforum.anthonynolan.org/t/stem-cell-transplant-with-high-blast-count/519 "2022-03-19T16:56:00Z")
Good morning all, I am reaching out in hopes of finding someone who’s situation is similar to my husbands. My husband has been on three rounds of chemotherapy in attempts to get him in remission. Unfortunately, MD Ander… --- ## [Worry about side effects of own stem cell transplant](https://patientforum.anthonynolan.org/t/worry-about-side-effects-of-own-stem-cell-transplant/508)
**Author:** [@GlynisG](https://patientforum.anthonynolan.org/u/GlynisG)\ **Replies:** 4\ **Last updated:** [January 20, 2022, 4:38pm UTC](https://patientforum.anthonynolan.org/t/worry-about-side-effects-of-own-stem-cell-transplant/508 "2022-01-20T16:38:21Z")
I am awaiting my stem cell transplant following harvesting. Consultant has painted a very difficult time in hospital with the chemotherapy treatment and After transplant problems. --- ## [Home comforts in hospital](https://patientforum.anthonynolan.org/t/home-comforts-in-hospital/509)
**Author:** [@GlynisG](https://patientforum.anthonynolan.org/u/GlynisG)\ **Replies:** 3\ **Last updated:** [January 13, 2022, 12:50pm UTC](https://patientforum.anthonynolan.org/t/home-comforts-in-hospital/509 "2022-01-13T12:50:01Z")
Thank you for your answers to my concern over upcoming SCT. Taking home comforts to hospital was mentioned. What would be allowed in hospital? Also coping with isolation which I assume now will be more difficult with C… --- ## [Waiting for a donor](https://patientforum.anthonynolan.org/t/waiting-for-a-donor/438)
**Author:** [@Clare\_AtAnthonyNolan](https://patientforum.anthonynolan.org/u/Clare_AtAnthonyNolan)\ **Replies:** 3\ **Last updated:** [January 17, 2020, 3:11pm UTC](https://patientforum.anthonynolan.org/t/waiting-for-a-donor/438 "2020-01-17T15:11:42Z")
Hello all. Hope everyone is well! At Anthony Nolan, we’re working on a new project to better understand how it feels when you are waiting to find out whether there is a matching donor for you. Can you tell us about tha… --- ## [Only Donor withdrew](https://patientforum.anthonynolan.org/t/only-donor-withdrew/393)
**Author:** [@Dannii](https://patientforum.anthonynolan.org/u/Dannii)\ **Replies:** 3\ **Last updated:** [November 15, 2018, 9:46pm UTC](https://patientforum.anthonynolan.org/t/only-donor-withdrew/393 "2018-11-15T21:46:00Z")
Hi all I’ve posted on here once before asking about Haploidentical transplants, since that question my brother was lucky enough to find a MUD donor, as you can imagine we were all over the moon. My brother was about to … --- ## [SCT next week](https://patientforum.anthonynolan.org/t/sct-next-week/389)
**Author:** [@Gem03](https://patientforum.anthonynolan.org/u/Gem03)\ **Replies:** 4\ **Last updated:** [October 16, 2018, 10:37am UTC](https://patientforum.anthonynolan.org/t/sct-next-week/389 "2018-10-16T10:37:28Z")
Hi everyone. It’s confirmed that I am going in for my stem cell transplant next week. I feel so well that it feels wrong that I am having to do this but the tests say otherwise!!! Anyway - any positive stories/advice fro… --- ## [Haploidentical](https://patientforum.anthonynolan.org/t/haploidentical/386)
**Author:** [@Dannii](https://patientforum.anthonynolan.org/u/Dannii)\ **Replies:** 2\ **Last updated:** [October 11, 2018, 10:47am UTC](https://patientforum.anthonynolan.org/t/haploidentical/386 "2018-10-11T10:47:08Z")
Hi all, im new to the forum and my brother has been diagnosed with Accute Undiffrentiated Luekemia. He’s just finished his first round of chemo and is CR1 he starts his 2nd round today. so far he hasn’t got a donor… i ha… --- ## [Someone just to keep me going](https://patientforum.anthonynolan.org/t/someone-just-to-keep-me-going/370)
**Author:** [@Lindsaylou](https://patientforum.anthonynolan.org/u/Lindsaylou)\ **Replies:** 7\ **Last updated:** [September 2, 2018, 6:32pm UTC](https://patientforum.anthonynolan.org/t/someone-just-to-keep-me-going/370 "2018-09-02T18:32:07Z")
Hi, I’m lindsaylou and my husband is at the moment going through intensive chemotherapy and after we have found a donar, then a bone marrow transplant. I’m doing ok and he is but I don’t know about other partners, but it… --- ## [Advise please](https://patientforum.anthonynolan.org/t/advise-please/366)
**Author:** [@Annabel](https://patientforum.anthonynolan.org/u/Annabel)\ **Replies:** 4\ **Last updated:** [July 20, 2018, 5:51pm UTC](https://patientforum.anthonynolan.org/t/advise-please/366 "2018-07-20T17:51:36Z")
Hubby just been told he needs stem cell cemo as well all very frightening any help advise would be very welcome, both of us still in shock, need to tell consultant on Wednesday what we want to do any advise on this I wo… --- ## [MDS Worry](https://patientforum.anthonynolan.org/t/mds-worry/356)
**Author:** [@johnmedina](https://patientforum.anthonynolan.org/u/johnmedina)\ **Replies:** 13\ **Last updated:** [May 26, 2018, 9:59am UTC](https://patientforum.anthonynolan.org/t/mds-worry/356 "2018-05-26T09:59:51Z")
Hello every one This is the first time Ive written any thing on the forum I will give you a brief history of my battle with Cancer.In 2015 I was diagnosed with T lymphoblastic lymphoma This has now been eradicated wit… --- ## [Problems](https://patientforum.anthonynolan.org/t/problems/350)
**Author:** [@Lindsaylou](https://patientforum.anthonynolan.org/u/Lindsaylou)\ **Replies:** 0\ **Last updated:** [April 21, 2018, 10:30am UTC](https://patientforum.anthonynolan.org/t/problems/350 "2018-04-21T10:30:13Z")
Hi, It’s lindsay Lou, just an update and if anyone has experienced this. My husband Darrell is pre transplant and in hospital, not for the bone marrow bit yet but to get rid of some cancer cells before and intensive che… --- ## [Update](https://patientforum.anthonynolan.org/t/update/347)
**Author:** [@Lindsaylou](https://patientforum.anthonynolan.org/u/Lindsaylou)\ **Replies:** 1\ **Last updated:** [April 16, 2018, 7:32am UTC](https://patientforum.anthonynolan.org/t/update/347 "2018-04-16T07:32:25Z")
Hi everyone, Thought I’d give you an update on what’s happening with my husband Darrell. Unfortunately, it’s not great news. Darrells cancer is more aggressive than thought and now needs some chemo to get rid of luekemi… [Next page](https://patientforum.anthonynolan.org/c/pre-transplant/8.md?page=1)