# Pre-transplant

**URL:** https://patientforum.anthonynolan.org/c/pre-transplant/8.md?page=1

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**Page:** 2

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## [Holidays](https://patientforum.anthonynolan.org/t/holidays/344)

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**Author:** [@Lindsaylou](https://patientforum.anthonynolan.org/u/Lindsaylou)\
**Replies:** 4\
**Last updated:** [March 20, 2018, 12:51pm UTC](https://patientforum.anthonynolan.org/t/holidays/344 "2018-03-20T12:51:21Z")

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Hi, my husband is waiting to see the hospital about his bone marrow transplant, we have an appointment with the local hospital on Wednesday, but know they haven’t got around to even finding a donation yet, my husband lov…

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## [Multiple myeloma...stem cell transplant](https://patientforum.anthonynolan.org/t/multiple-myeloma-stem-cell-transplant/341)

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**Author:** [@Shell](https://patientforum.anthonynolan.org/u/Shell)\
**Replies:** 3\
**Last updated:** [March 18, 2018, 6:45pm UTC](https://patientforum.anthonynolan.org/t/multiple-myeloma-stem-cell-transplant/341 "2018-03-18T18:45:31Z")

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My partner is due to have a stem cell transplant in a couple of weeks…I’m extremely worried and would benefit from some advice to help me through the process…he has multiple myeloma cancer and this is the next step on hi…

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## [Pre -treatment](https://patientforum.anthonynolan.org/t/pre-treatment/338)

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**Author:** [@Lindsaylou](https://patientforum.anthonynolan.org/u/Lindsaylou)\
**Replies:** 7\
**Last updated:** [March 7, 2018, 2:03pm UTC](https://patientforum.anthonynolan.org/t/pre-treatment/338 "2018-03-07T14:03:39Z")

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Hi I’m lindsay, my husband is Darrell and he had aplastic anemia twice but unfortunately this time it’s developed into MDS, which is bone marrow cancer, and we were told on Wednesday he desperately needs a bone marrow tr…

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## [Why me, why now?](https://patientforum.anthonynolan.org/t/why-me-why-now/47)

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**Author:** [@Dieseldrinker62](https://patientforum.anthonynolan.org/u/Dieseldrinker62)\
**Replies:** 9\
**Last updated:** [November 16, 2017, 9:06am UTC](https://patientforum.anthonynolan.org/t/why-me-why-now/47 "2017-11-16T09:06:46Z")

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A question we must all have asked ourselves when we were first told we had Cancer is why is it me and why has it happened now? I know its a thought that crosses my mind several times. I’ve heard the suggestion that ever…

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## [Question from a newbie](https://patientforum.anthonynolan.org/t/question-from-a-newbie/309)

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**Author:** [@davidsmum](https://patientforum.anthonynolan.org/u/davidsmum)\
**Replies:** 3\
**Last updated:** [November 14, 2017, 12:41pm UTC](https://patientforum.anthonynolan.org/t/question-from-a-newbie/309 "2017-11-14T12:41:36Z")

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Hi, I have just joined these forums as my son, aged 25, has suffered a relapse of his ALL after four years in remission, and is due to have his transplant on the 27th. He has got a niggly cough at the moment, which his d…

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## [Infertility and Dealing With It](https://patientforum.anthonynolan.org/t/infertility-and-dealing-with-it/292)

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**Author:** [@KatieS](https://patientforum.anthonynolan.org/u/KatieS)\
**Replies:** 8\
**Last updated:** [September 11, 2017, 11:04am UTC](https://patientforum.anthonynolan.org/t/infertility-and-dealing-with-it/292 "2017-09-11T11:04:08Z")

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Hello All, I wrote on here a few weeks ago about whether or not to go ahead with an auto or allo transplant. I decided, with the advice from my doctors, to go for an auto transplant. I’ve had my stem cells harvested and…

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## [Anyone else experienced 'FMC 50' conditioning?](https://patientforum.anthonynolan.org/t/anyone-else-experienced-fmc-50-conditioning/287)

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**Author:** [@GailC](https://patientforum.anthonynolan.org/u/GailC)\
**Replies:** 6\
**Last updated:** [August 14, 2017, 12:52pm UTC](https://patientforum.anthonynolan.org/t/anyone-else-experienced-fmc-50-conditioning/287 "2017-08-14T12:52:42Z")

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Hi I am an AML patient and am expecting a date for an allogenic stem cell transplant at some point in the next few weeks. I have completed one cycle of induction chemotherapy - ‘DA’ - following which a bone marrow biops…

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## [PRE SCT TESTS](https://patientforum.anthonynolan.org/t/pre-sct-tests/280)

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**Author:** [@had0171](https://patientforum.anthonynolan.org/u/had0171)\
**Replies:** 7\
**Last updated:** [July 5, 2017, 1:45pm UTC](https://patientforum.anthonynolan.org/t/pre-sct-tests/280 "2017-07-05T13:45:11Z")

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Hi everyone. I am due to go in for my SCT at the end of July - this was arrange with my consultant in Dec 2016 and I’ve seen him once since then in early June when it we confirmed this - but no set date was made. We ar…

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## [ALL PH+ awaiting transplant in hospital](https://patientforum.anthonynolan.org/t/all-ph-awaiting-transplant-in-hospital/263)

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**Author:** [@Lou21w](https://patientforum.anthonynolan.org/u/Lou21w)\
**Replies:** 3\
**Last updated:** [April 20, 2017, 6:08pm UTC](https://patientforum.anthonynolan.org/t/all-ph-awaiting-transplant-in-hospital/263 "2017-04-20T18:08:59Z")

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Hi, I am due to have a transplant next week from a matched sibling. Just wondering if anyone has had a similar diagnosis? Also I am having TBI twice a day for 4 days did anybody have this before chemo? Thanks

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## [Donor match and GvHD concerns](https://patientforum.anthonynolan.org/t/donor-match-and-gvhd-concerns/237)

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**Author:** [@miss\_manxie](https://patientforum.anthonynolan.org/u/miss_manxie)\
**Replies:** 3\
**Last updated:** [November 24, 2016, 11:15am UTC](https://patientforum.anthonynolan.org/t/donor-match-and-gvhd-concerns/237 "2016-11-24T11:15:53Z")

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Hi everyone I previously started a conversation regarding about my partner’s journey for treatment against acute myeloid leukaemia in late August this year. I am proud to say that thanks to the support of Anthony Nolan…

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## [CML bone marrow in a few weeks](https://patientforum.anthonynolan.org/t/cml-bone-marrow-in-a-few-weeks/230)

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**Author:** [@Laura1102](https://patientforum.anthonynolan.org/u/Laura1102)\
**Replies:** 10\
**Last updated:** [October 24, 2016, 8:25pm UTC](https://patientforum.anthonynolan.org/t/cml-bone-marrow-in-a-few-weeks/230 "2016-10-24T20:25:57Z")

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Hi everyone. A little bit of background was diagnosed with CML in Aug 14. 1st and 2nd line treatment and has failed now on 3rd line and due to have a bone marrow transplant in November. We have got a match which is a 10…

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## [Very Anxious!!](https://patientforum.anthonynolan.org/t/very-anxious/226)

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**Author:** [@TJM](https://patientforum.anthonynolan.org/u/TJM)\
**Replies:** 5\
**Last updated:** [September 26, 2016, 9:37pm UTC](https://patientforum.anthonynolan.org/t/very-anxious/226 "2016-09-26T21:37:04Z")

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My husband is going into Freeman hospital, Newcastle this Thursday 22nd Sept for a weeks chemo prior to stem cell transplant on 29th! When he had FLAG Ida he ended up in critical care unit for 2 weeks in May, I’m terrifi…

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## [Haplo sibling donor?](https://patientforum.anthonynolan.org/t/haplo-sibling-donor/222)

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**Author:** [@Elmambo](https://patientforum.anthonynolan.org/u/Elmambo)\
**Replies:** 3\
**Last updated:** [September 8, 2016, 7:56pm UTC](https://patientforum.anthonynolan.org/t/haplo-sibling-donor/222 "2016-09-08T19:56:11Z")

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Hello everyone I am currently in my local hospital as I’m not too well, and despite being in hospital there is no one here to answer my question! My sis rang me last night to say she receiv.ed a letter from kings… It b…

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## [Preparations? Questions?](https://patientforum.anthonynolan.org/t/preparations-questions/220)

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**Author:** [@Dee](https://patientforum.anthonynolan.org/u/Dee)\
**Replies:** 8\
**Last updated:** [August 30, 2016, 2:28pm UTC](https://patientforum.anthonynolan.org/t/preparations-questions/220 "2016-08-30T14:28:28Z")

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Hi, I’m finally back. I’ve been doing the Brentuximab thing for several months and a couple of weeks ago heard the wonderful words ‘complete remission.’ So the move to allo is now progressing a pace. I met with my new …

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## [Refractory hodgkins tandem transplant?](https://patientforum.anthonynolan.org/t/refractory-hodgkins-tandem-transplant/209)

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**Author:** [@Elmambo](https://patientforum.anthonynolan.org/u/Elmambo)\
**Replies:** 13\
**Last updated:** [August 7, 2016, 8:44am UTC](https://patientforum.anthonynolan.org/t/refractory-hodgkins-tandem-transplant/209 "2016-08-07T08:44:32Z")

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Hi there I have just joined and hope someone may pop along who has experience with refractory HL. I HAD A MEETING this week and ( in a nutshell) they said my best bet at a long term survival was a stem cell followed 90…

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## [hickman line infection again!](https://patientforum.anthonynolan.org/t/hickman-line-infection-again/217)

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**Author:** [@Walshy2016](https://patientforum.anthonynolan.org/u/Walshy2016)\
**Replies:** 5\
**Last updated:** [August 2, 2016, 2:43pm UTC](https://patientforum.anthonynolan.org/t/hickman-line-infection-again/217 "2016-08-02T14:43:15Z")

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HI, I have posted on here before about my fiancé going in for transplant. Anyways he is now in on day -4 now. finished radiotherapy today. He spiked temperature 2 days ago and cultures show it is yet again another line …

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## [Pre transplant](https://patientforum.anthonynolan.org/t/pre-transplant/212)

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**Author:** [@Walshy2016](https://patientforum.anthonynolan.org/u/Walshy2016)\
**Replies:** 3\
**Last updated:** [July 7, 2016, 2:28pm UTC](https://patientforum.anthonynolan.org/t/pre-transplant/212 "2016-07-07T14:28:34Z")

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Hello, My fiancé is due to have stem cell transplant ( unrelated donor) in August. He was diagnosed with ALL in January ( Philadelphia positive). He was consented to go on ukALL trial to have three months chemo but due …

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## [Advice for preparing for a bone marrow or stem cell transplant - Patient experience podcast](https://patientforum.anthonynolan.org/t/advice-for-preparing-for-a-bone-marrow-or-stem-cell-transplant-patient-experience-podcast/207)

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**Author:** [@Billie\_AnthonyNolan](https://patientforum.anthonynolan.org/u/Billie_AnthonyNolan)\
**Replies:** 1\
**Last updated:** [June 15, 2016, 12:54pm UTC](https://patientforum.anthonynolan.org/t/advice-for-preparing-for-a-bone-marrow-or-stem-cell-transplant-patient-experience-podcast/207 "2016-06-15T12:54:06Z")

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Hello everyone, We interviewed clinical nurse specialist Hayley Leonard about preparing for a bone marrow transplant for the first episode of our podcast. We learnt what patients can do for themselves pre transplant to …

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## [STEM CELL TRANSPLANT - DECISION ?](https://patientforum.anthonynolan.org/t/stem-cell-transplant-decision/184)

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**Author:** [@PBARTON](https://patientforum.anthonynolan.org/u/PBARTON)\
**Replies:** 7\
**Last updated:** [March 7, 2016, 1:36pm UTC](https://patientforum.anthonynolan.org/t/stem-cell-transplant-decision/184 "2016-03-07T13:36:26Z")

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H

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## [For those who don't live near their transplant hospital how did you cope with the logistics?](https://patientforum.anthonynolan.org/t/for-those-who-dont-live-near-their-transplant-hospital-how-did-you-cope-with-the-logistics/172)

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**Author:** [@beckybram](https://patientforum.anthonynolan.org/u/beckybram)\
**Replies:** 6\
**Last updated:** [November 2, 2015, 1:44pm UTC](https://patientforum.anthonynolan.org/t/for-those-who-dont-live-near-their-transplant-hospital-how-did-you-cope-with-the-logistics/172 "2015-11-02T13:44:28Z")

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Hi i know many others like myself have to travel a long way to their transplant hospital. I am due to be admitted soon for transplant and wondering how you coped with the logistics of it all. What did you take with you …

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## [Fertility treatment pre-transplant](https://patientforum.anthonynolan.org/t/fertility-treatment-pre-transplant/159)

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**Author:** [@beckybram](https://patientforum.anthonynolan.org/u/beckybram)\
**Replies:** 7\
**Last updated:** [October 1, 2015, 7:42pm UTC](https://patientforum.anthonynolan.org/t/fertility-treatment-pre-transplant/159 "2015-10-01T19:42:26Z")

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Hi Just wondering if anyone else has had fertility treatment prior to transplant and how you found it along side getting ready for transplant. I am starting the process this week to hopefully freeze embryos for after tr…

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## [Bm results raising questions](https://patientforum.anthonynolan.org/t/bm-results-raising-questions/155)

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**Author:** [@LolaB](https://patientforum.anthonynolan.org/u/LolaB)\
**Replies:** 12\
**Last updated:** [September 17, 2015, 9:33pm UTC](https://patientforum.anthonynolan.org/t/bm-results-raising-questions/155 "2015-09-17T21:33:52Z")

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Utterly devastated to have received an email from hospital late last night saying that due to slightly better than expected results from my pre transplant bm extraction it might not be the ‘right time to transplant’ - I …

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## [Secret nerves, any advice?](https://patientforum.anthonynolan.org/t/secret-nerves-any-advice/148)

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**Author:** [@LolaB](https://patientforum.anthonynolan.org/u/LolaB)\
**Replies:** 2\
**Last updated:** [August 26, 2015, 8:38pm UTC](https://patientforum.anthonynolan.org/t/secret-nerves-any-advice/148 "2015-08-26T20:38:17Z")

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Hi all.. My transplant is a few weeks away yet and I’ve been super matter of fact about the whole thing so far… To do lists, practical pyjama shopping getting the house straight etc etc but having had my ‘work up’ day of…

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## [Great patient blog](https://patientforum.anthonynolan.org/t/great-patient-blog/149)

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**Author:** [@Billie\_AnthonyNolan](https://patientforum.anthonynolan.org/u/Billie_AnthonyNolan)\
**Replies:** 1\
**Last updated:** [August 25, 2015, 11:50am UTC](https://patientforum.anthonynolan.org/t/great-patient-blog/149 "2015-08-25T11:50:46Z")

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Hello everyone, I recently came across a great patient blog by a lady called Rachel who is approaching her transplant date. I think it is potentially really helpful for those preparing for transplant. Take a look over …

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## [Transplant Nerves](https://patientforum.anthonynolan.org/t/transplant-nerves/141)

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**Author:** [@josiemoss](https://patientforum.anthonynolan.org/u/josiemoss)\
**Replies:** 12\
**Last updated:** [August 6, 2015, 7:54pm UTC](https://patientforum.anthonynolan.org/t/transplant-nerves/141 "2015-08-06T19:54:13Z")

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Hi, just wondering how everyone coped/felt in the last couple of weeks pre transplant? I’m 3 weeks away now. Partly excited that it could (sorry WILL) be an end to all this and partly scared of the process, after effects…

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## [how long did it take to find your donor](https://patientforum.anthonynolan.org/t/how-long-did-it-take-to-find-your-donor/132)

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**Author:** [@josiemoss](https://patientforum.anthonynolan.org/u/josiemoss)\
**Replies:** 9\
**Last updated:** [August 3, 2015, 10:57am UTC](https://patientforum.anthonynolan.org/t/how-long-did-it-take-to-find-your-donor/132 "2015-08-03T10:57:46Z")

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I know it’s such a tricky question but I’d be really interest to hear from people how long it took from finding they needed transplant to going in for the procedure.

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## [What to do with my hair?](https://patientforum.anthonynolan.org/t/what-to-do-with-my-hair/130)

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**Author:** [@LolaB](https://patientforum.anthonynolan.org/u/LolaB)\
**Replies:** 5\
**Last updated:** [August 1, 2015, 9:51pm UTC](https://patientforum.anthonynolan.org/t/what-to-do-with-my-hair/130 "2015-08-01T21:51:27Z")

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Hi I’m waiting for a transplant and working through lots of info… Today’s burning question is my hair!..my consultant has said that I probably shouldn’t get total hair loss but that it will probably come out in patchy cl…

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## [Time from donor blood sample to confirmed match](https://patientforum.anthonynolan.org/t/time-from-donor-blood-sample-to-confirmed-match/140)

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**Author:** [@PreciousFEW](https://patientforum.anthonynolan.org/u/PreciousFEW)\
**Replies:** 4\
**Last updated:** [July 14, 2015, 10:35am UTC](https://patientforum.anthonynolan.org/t/time-from-donor-blood-sample-to-confirmed-match/140 "2015-07-14T10:35:34Z")

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Can anyone explain why it can take up to three whole months from collecting a blood sample from a potential donor to finding out if it is a match please?

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## [Are there many out there who are waiting to hear about a donor to have a second Stemcell transplant?](https://patientforum.anthonynolan.org/t/are-there-many-out-there-who-are-waiting-to-hear-about-a-donor-to-have-a-second-stemcell-transplant/108)

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**Author:** [@STake2](https://patientforum.anthonynolan.org/u/STake2)\
**Replies:** 9\
**Last updated:** [June 25, 2015, 2:07pm UTC](https://patientforum.anthonynolan.org/t/are-there-many-out-there-who-are-waiting-to-hear-about-a-donor-to-have-a-second-stemcell-transplant/108 "2015-06-25T14:07:39Z")

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I am in a state of anxiety at the moment waiting to hear about a donor so that I can have a second stemcell transplant. I have AML and have been being treated with chemo again since mid 2014. Are there any others out the…

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## [working up to transplant how have you found all the organising such as work and finances](https://patientforum.anthonynolan.org/t/working-up-to-transplant-how-have-you-found-all-the-organising-such-as-work-and-finances/126)

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**Author:** [@beckybram](https://patientforum.anthonynolan.org/u/beckybram)\
**Replies:** 8\
**Last updated:** [June 1, 2015, 6:52pm UTC](https://patientforum.anthonynolan.org/t/working-up-to-transplant-how-have-you-found-all-the-organising-such-as-work-and-finances/126 "2015-06-01T18:52:58Z")

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im Currently working up to my transplant and am finding it difficult with all there is to think about and organise. Such as work i only work part time due to my illnesses . I have been told I will be off for about a year…

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