# Latest **URL:** https://patientforum.anthonynolan.org/latest.md [Latest](https://patientforum.anthonynolan.org/latest.md) · [Categories](https://patientforum.anthonynolan.org/categories.md) · [Tags](https://patientforum.anthonynolan.org/tags.md) --- ## [Aml sct for senior](https://patientforum.anthonynolan.org/t/aml-sct-for-senior/842)
**Author:** [@vivsheppard](https://patientforum.anthonynolan.org/u/vivsheppard)\ **Replies:** 3\ **Last updated:** [October 22, 2026, 9:57pm UTC](https://patientforum.anthonynolan.org/t/aml-sct-for-senior/842 "2026-10-22T21:57:44Z")
Hi, I am Vivien, I was diagnosed with AML in July. Was in remission after first round of chemo and now had 2 rounds. Been to see consultant at Cambridge who recommends SCT. I am quite anxious of how rigourous this will b… --- ## [2nd Transplant and my daughter is so ill](https://patientforum.anthonynolan.org/t/2nd-transplant-and-my-daughter-is-so-ill/539)
**Author:** [@Auds21](https://patientforum.anthonynolan.org/u/Auds21)\ **Replies:** 1043\ **Last updated:** [October 21, 2026, 7:48am UTC](https://patientforum.anthonynolan.org/t/2nd-transplant-and-my-daughter-is-so-ill/539 "2026-10-21T07:48:36Z")
My daughter has AML and had her first transplant in January. Everything was going well for the first 100days but then she rejected the new cells. Her first donor was 100% match but unfortunately couldn’t donate this time… --- ## [Prophylactic antibiotics](https://patientforum.anthonynolan.org/t/prophylactic-antibiotics/848)
**Author:** [@Rach](https://patientforum.anthonynolan.org/u/Rach)\ **Replies:** 3\ **Last updated:** [October 18, 2026, 8:33pm UTC](https://patientforum.anthonynolan.org/t/prophylactic-antibiotics/848 "2026-10-18T20:33:16Z")
Hi My daughter had a stem cell transplant 10 years ago. She is still taking penicillin v twice a day. This may be causing stomach irritation now. Did anyone stop prophylactic antibiotics after transplant? --- ## [Bruising on arms](https://patientforum.anthonynolan.org/t/bruising-on-arms/623)
**Author:** [@Paulasmith](https://patientforum.anthonynolan.org/u/Paulasmith)\ **Replies:** 3\ **Last updated:** [October 17, 2026, 1:42pm UTC](https://patientforum.anthonynolan.org/t/bruising-on-arms/623 "2026-10-17T13:42:19Z")
I was diagnosed with AML in September 2022. I’ve had 3 rounds of chemo and double dose of full body radiotherapy, culminating in cord transplant in February 2023. I am now in remission but still can see the bruising I ha… --- ## [Welcome to the Forum! A thread to introduce your self and ask questions](https://patientforum.anthonynolan.org/t/welcome-to-the-forum-a-thread-to-introduce-your-self-and-ask-questions/607)
**Author:** [@Liam\_at\_AnthonyNolan](https://patientforum.anthonynolan.org/u/Liam_at_AnthonyNolan)\ **Replies:** 17\ **Last updated:** [June 3, 2026, 10:43am UTC](https://patientforum.anthonynolan.org/t/welcome-to-the-forum-a-thread-to-introduce-your-self-and-ask-questions/607 "2026-06-03T10:43:56Z")
Hello! I am Liam, the Patients and Families Manager for Patient Services. Welcome! Thank you for joining. This thread is in aid of anyone new to forum to introduce themselves or ask any questions you may have not been … --- ## [Laundry protocol](https://patientforum.anthonynolan.org/t/laundry-protocol/806)
**Author:** [@MakingDo](https://patientforum.anthonynolan.org/u/MakingDo)\ **Replies:** 7\ **Last updated:** [June 2, 2026, 12:31pm UTC](https://patientforum.anthonynolan.org/t/laundry-protocol/806 "2026-06-02T12:31:40Z")
I about to start supporting my adult daughter through her SCT and I am trying to plan for the best way to manage her laundry, my own clothes and items she wants with her (craft materials, books etc). I have sourced zip… --- ## [I had a stem cell transplant 5years ago and now affecting my liver ](https://patientforum.anthonynolan.org/t/i-had-a-stem-cell-transplant-5years-ago-and-now-affecting-my-liver/799)
**Author:** [@Jade](https://patientforum.anthonynolan.org/u/Jade)\ **Replies:** 1\ **Last updated:** [May 28, 2026, 4:22pm UTC](https://patientforum.anthonynolan.org/t/i-had-a-stem-cell-transplant-5years-ago-and-now-affecting-my-liver/799 "2026-05-28T16:22:20Z")
Hello I got diagnosed with cml in October 2020 it then went into blast phase and I started my chemotherapy in January 2021 I had two rounds of chemotherapy and then my stem cell transplant in July 2021 now after all th… --- ## [Mother from Kazakhstan seeking advice for daughter with HLH and bone marrow transplant](https://patientforum.anthonynolan.org/t/mother-from-kazakhstan-seeking-advice-for-daughter-with-hlh-and-bone-marrow-transplant/800)
**Author:** [@12345a](https://patientforum.anthonynolan.org/u/12345a)\ **Replies:** 0\ **Last updated:** [May 27, 2026, 3:29pm UTC](https://patientforum.anthonynolan.org/t/mother-from-kazakhstan-seeking-advice-for-daughter-with-hlh-and-bone-marrow-transplant/800 "2026-05-27T15:29:03Z")
Hello everyone. I am a mother from Kazakhstan. My 2-year-old daughter, Balym, has been fighting Hemophagocytic Lymphohistiocytosis (HLH) for over 1 year and 3 months. She has already gone through chemotherapy and suffere… --- ## [10 year old stem cell transplant +7 days](https://patientforum.anthonynolan.org/t/10-year-old-stem-cell-transplant-7-days/793)
**Author:** [@Samantha92](https://patientforum.anthonynolan.org/u/Samantha92)\ **Replies:** 2\ **Last updated:** [May 23, 2026, 7:19am UTC](https://patientforum.anthonynolan.org/t/10-year-old-stem-cell-transplant-7-days/793 "2026-05-23T07:19:03Z")
My son had his stem cell transplant 7 days ago he has had 2 platelet infusions and is on a pain pump due to not being able to walk as below the knees on both legs hurt ,back and front. He’s now developed a fever of 39.9.… --- ## [avascular necrosis](https://patientforum.anthonynolan.org/t/avascular-necrosis/510)
**Author:** [@julie50](https://patientforum.anthonynolan.org/u/julie50)\ **Replies:** 5\ **Last updated:** [May 15, 2026, 8:51am UTC](https://patientforum.anthonynolan.org/t/avascular-necrosis/510 "2026-05-15T08:51:30Z")
hi i am new here,my name is julie i am 51 in 2017 i was diagnosed with AML MPM 1 mutated , in January 2018 I had my first allogeneic stem cell transplant and then a second one in August 2018 due to graft failure that tra… --- ## [Pre Transplant Journey ](https://patientforum.anthonynolan.org/t/pre-transplant-journey/784)
**Author:** [@SimonW](https://patientforum.anthonynolan.org/u/SimonW)\ **Replies:** 4\ **Last updated:** [May 11, 2026, 6:54pm UTC](https://patientforum.anthonynolan.org/t/pre-transplant-journey/784 "2026-05-11T18:54:52Z")
Hi Everyone I was diagnosed with a rare form of CLL just over a year ago aged 57 and have been under treatment that have brought it back under control. However the only option for me is for a non related stem cell trans… --- ## [Struggling to get back to sleep](https://patientforum.anthonynolan.org/t/struggling-to-get-back-to-sleep/786)
**Author:** [@Levante](https://patientforum.anthonynolan.org/u/Levante)\ **Replies:** 1\ **Last updated:** [May 8, 2026, 6:06pm UTC](https://patientforum.anthonynolan.org/t/struggling-to-get-back-to-sleep/786 "2026-05-08T18:06:06Z")
Hi my name is Levante .I have a 21 year old son who needs a bone marrow transplant. I am staying with him in the hospital as we are having treatment to get his bone marrow a negative result. This is the 6th week. I go to… --- ## [Insomnia Sleep issues](https://patientforum.anthonynolan.org/t/insomnia-sleep-issues/785)
**Author:** [@Levante](https://patientforum.anthonynolan.org/u/Levante)\ **Replies:** 0\ **Last updated:** [May 8, 2026, 8:37am UTC](https://patientforum.anthonynolan.org/t/insomnia-sleep-issues/785 "2026-05-08T08:37:46Z")
Anyone have any advice on waking at 4am and can’t go back to sleep please? --- ## [Husband with AML](https://patientforum.anthonynolan.org/t/husband-with-aml/782)
**Author:** [@Janey](https://patientforum.anthonynolan.org/u/Janey)\ **Replies:** 3\ **Last updated:** [May 6, 2026, 3:28pm UTC](https://patientforum.anthonynolan.org/t/husband-with-aml/782 "2026-05-06T15:28:26Z")
Hi my husband day +60 of SCT and home but trying to navigate normality is proving hard! I know he’s the patient but im finding it hard because he doesn’t ever say how he feels and I feel our whole world been torn apart … --- ## [Welcome to our forum — getting started guide](https://patientforum.anthonynolan.org/t/welcome-to-our-forum-getting-started-guide/781)
**Author:** [@dave.vernon](https://patientforum.anthonynolan.org/u/dave.vernon)\ **Replies:** 0\ **Last updated:** [April 30, 2026, 2:50pm UTC](https://patientforum.anthonynolan.org/t/welcome-to-our-forum-getting-started-guide/781 "2026-04-30T14:50:04Z")
New here? This post walks you through everything you need to know to participate in the forum — from creating your account to joining the conversation. In this guide Creating an account Resetting your password R… --- ## [Sibling Donor living in Germany](https://patientforum.anthonynolan.org/t/sibling-donor-living-in-germany/633)
**Author:** [@MakingDo](https://patientforum.anthonynolan.org/u/MakingDo)\ **Replies:** 1\ **Last updated:** [April 21, 2026, 9:36am UTC](https://patientforum.anthonynolan.org/t/sibling-donor-living-in-germany/633 "2026-04-21T09:36:28Z")
Hi, My adult daughter requires a pre-emptive stem cell transplant (Gata2 deficiency) and my adult son who lives in Germany is being asked to be a donor. He was previously told (last year) that he would not be their choi… --- ## [My son was diagnosed with acute lymphoblastic leukemia](https://patientforum.anthonynolan.org/t/my-son-was-diagnosed-with-acute-lymphoblastic-leukemia/632)
**Author:** [@Levante](https://patientforum.anthonynolan.org/u/Levante)\ **Replies:** 2\ **Last updated:** [April 20, 2026, 5:29pm UTC](https://patientforum.anthonynolan.org/t/my-son-was-diagnosed-with-acute-lymphoblastic-leukemia/632 "2026-04-20T17:29:50Z")
Hi I’m new here.My 21 year old son was diagnosed with acute lymphoblastic leukemia in April 2024.We have been on treatment for 2 year’s. He was doing really well until December 2025 when he suddenly had blurry vision in… --- ## [10 year old due a bone marrow transplant](https://patientforum.anthonynolan.org/t/10-year-old-due-a-bone-marrow-transplant/631)
**Author:** [@Samantha92](https://patientforum.anthonynolan.org/u/Samantha92)\ **Replies:** 5\ **Last updated:** [April 16, 2026, 4:33pm UTC](https://patientforum.anthonynolan.org/t/10-year-old-due-a-bone-marrow-transplant/631 "2026-04-16T16:33:25Z")
My son 10years old was diagnosed with lysinuric protein intolerance (LPI) a very rare multi organ metabolic disease in August 2024 , in which he had a gastrostomy placed and was put on a protein restricted diet and medic… --- ## [Anyone over 60 made a full recovery?](https://patientforum.anthonynolan.org/t/anyone-over-60-made-a-full-recovery/630)
**Author:** [@Aspro354](https://patientforum.anthonynolan.org/u/Aspro354)\ **Replies:** 2\ **Last updated:** [February 20, 2026, 6:27pm UTC](https://patientforum.anthonynolan.org/t/anyone-over-60-made-a-full-recovery/630 "2026-02-20T18:27:05Z")
Hi, I’m paul, thank you for accepting me to the forum. I have recently been diagnosed with myelofibrosis and am currently being tested for a stem cell transplant, I am almost 62 years old and just wondered if anyone my … --- ## [My wonderful husband is no more](https://patientforum.anthonynolan.org/t/my-wonderful-husband-is-no-more/629)
**Author:** [@FizzyFeet](https://patientforum.anthonynolan.org/u/FizzyFeet)\ **Replies:** 2\ **Last updated:** [January 25, 2026, 9:07pm UTC](https://patientforum.anthonynolan.org/t/my-wonderful-husband-is-no-more/629 "2026-01-25T21:07:56Z")
Just spent my first Christmas in 43 years without my wonderful husband. He went in to the Sutton Marsden to have his, supposedly, life-enhancing stem cell transplant on his 67th birthday. \[He had endured MDS blood cancer… --- ## [My mam passed away after STC](https://patientforum.anthonynolan.org/t/my-mam-passed-away-after-stc/628)
**Author:** [@Kaiii27](https://patientforum.anthonynolan.org/u/Kaiii27)\ **Replies:** 1\ **Last updated:** [October 29, 2025, 9:29am UTC](https://patientforum.anthonynolan.org/t/my-mam-passed-away-after-stc/628 "2025-10-29T09:29:26Z")
Hey, i would like to talk about the passing of my mam she passed away in July this year 10 days after the STC, this was due to a sepsis infection, I have read on this website and see that it is common but how come it is… --- ## [Stomach cramps/bloating Day +65](https://patientforum.anthonynolan.org/t/stomach-cramps-bloating-day-65/627)
**Author:** [@Vollie](https://patientforum.anthonynolan.org/u/Vollie)\ **Replies:** 1\ **Last updated:** [October 15, 2025, 9:22am UTC](https://patientforum.anthonynolan.org/t/stomach-cramps-bloating-day-65/627 "2025-10-15T09:22:31Z")
Anyone had early gut GVHD and what were your symptoms. I have had stomach pains and bloating/indigestion but no diarrhoea or vomiting. These started about a week after Ciclosporin taper. Team not sure if it is GVHD or j… --- ## [Post BMT](https://patientforum.anthonynolan.org/t/post-bmt/626)
**Author:** [@KeithScott76](https://patientforum.anthonynolan.org/u/KeithScott76)\ **Replies:** 2\ **Last updated:** [July 11, 2025, 2:05pm UTC](https://patientforum.anthonynolan.org/t/post-bmt/626 "2025-07-11T14:05:12Z")
My name is Keith and l have just joined the group . l was diagnosed with AML in June 2017. After one round of chemo l developed and absese on my bowel and spleen . This lead to emergency surgery and l was left with a St… --- ## [Chimerism/ Mds/Dli](https://patientforum.anthonynolan.org/t/chimerism-mds-dli/625)
**Author:** [@Parkrunner](https://patientforum.anthonynolan.org/u/Parkrunner)\ **Replies:** 1\ **Last updated:** [March 12, 2025, 10:57am UTC](https://patientforum.anthonynolan.org/t/chimerism-mds-dli/625 "2025-03-12T10:57:13Z")
Hi everyone I was diagnosed with aml in May 2018 had a bone marrow transplant in May 2019. Life got pretty much back to normal around March 2020. Fast forward early last year 2024 neuts started declining. November 2024 … --- ## [CAR T-cell therapy](https://patientforum.anthonynolan.org/t/car-t-cell-therapy/624)
**Author:** [@Emily\_CNS](https://patientforum.anthonynolan.org/u/Emily_CNS)\ **Replies:** 0\ **Last updated:** [November 26, 2024, 3:32pm UTC](https://patientforum.anthonynolan.org/t/car-t-cell-therapy/624 "2024-11-26T15:32:46Z")
Hi everyone! I’m Emily, the CAR-T Clinical Nurse Specialist here at Anthony Nolan. I work with the charity 3 days a week and also work at an NHS CAR-T centre 2 days a week so have the privilege of supporting patients an… --- ## [How are you feeling?](https://patientforum.anthonynolan.org/t/how-are-you-feeling/497)
**Author:** [@Clare\_AtAnthonyNolan](https://patientforum.anthonynolan.org/u/Clare_AtAnthonyNolan)\ **Replies:** 16\ **Last updated:** [November 5, 2024, 12:35pm UTC](https://patientforum.anthonynolan.org/t/how-are-you-feeling/497 "2024-11-05T12:35:59Z")
Hi online community, I hope you are all keeping okay. On behalf of the patient team, I want to check in and see how everyone is feeling now that we are seeing a relaxation of nearly all restrictions across the UK? Under… --- ## [Joint Pain](https://patientforum.anthonynolan.org/t/joint-pain/424)
**Author:** [@RobA](https://patientforum.anthonynolan.org/u/RobA)\ **Replies:** 13\ **Last updated:** [November 5, 2024, 12:32pm UTC](https://patientforum.anthonynolan.org/t/joint-pain/424 "2024-11-05T12:32:10Z")
Hello all, I have been suffering with a reduced range of motion and pain in both shoulders for a while now (I am coming up to 2 years post transplant). My consultant recommended physiotherapy when I first raised the sub… --- ## [facial hair](https://patientforum.anthonynolan.org/t/facial-hair/574)
**Author:** [@Ainiti](https://patientforum.anthonynolan.org/u/Ainiti)\ **Replies:** 5\ **Last updated:** [November 5, 2024, 12:27pm UTC](https://patientforum.anthonynolan.org/t/facial-hair/574 "2024-11-05T12:27:45Z")
Hi everyone, I am in my early recovery from BMT, around +80, and I was wondering if any of you has experienced growth of facial hair with the cyclosporine and if you have been recommended any way of reducing them or make… --- ## [Food allergies post transplant and DLI](https://patientforum.anthonynolan.org/t/food-allergies-post-transplant-and-dli/581)
**Author:** [@Confusedlady](https://patientforum.anthonynolan.org/u/Confusedlady)\ **Replies:** 2\ **Last updated:** [November 5, 2024, 12:25pm UTC](https://patientforum.anthonynolan.org/t/food-allergies-post-transplant-and-dli/581 "2024-11-05T12:25:47Z")
Hi there Before my transplant I was gluten intolerant. However since transplant I have become dairy intolerant, and more recently having had DLI I now seem to have a new food allergy. I am still trying to work out which… --- ## [Travel insurance](https://patientforum.anthonynolan.org/t/travel-insurance/584)
**Author:** [@Laulau1](https://patientforum.anthonynolan.org/u/Laulau1)\ **Replies:** 2\ **Last updated:** [October 27, 2024, 12:27pm UTC](https://patientforum.anthonynolan.org/t/travel-insurance/584 "2024-10-27T12:27:39Z")
Hi I wondered if anyone post transplant just under 3 years has booked travel insurance which is reasonable and not £800.00 would be really helpful thanks ? [Next page](https://patientforum.anthonynolan.org/latest.md?page=1)