# My son Adam 2nd Bone marrow  transplant

**URL:** <https://patientforum.anthonynolan.org/t/my-son-adam-2nd-bone-marrow-transplant/621>\
**Category:** Welcome\
**Created:** [September 6, 2024, 3:35pm UTC](https://patientforum.anthonynolan.org/t/my-son-adam-2nd-bone-marrow-transplant/621 "2024-09-06T15:35:56Z")\
**Posts on this page:** 2\
**Page:** 1

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**Author:** ![Helen](https://avatars.discourse-cdn.com/v4/letter/h/a88e57/32.png) [@Helen](https://patientforum.anthonynolan.org/u/Helen)\
**Post date:** [September 6, 2024, 3:35pm UTC](https://patientforum.anthonynolan.org/t/my-son-adam-2nd-bone-marrow-transplant/621/1 "2024-09-06T15:35:56Z")

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Hi all my name is Helen and my son Adam had his 1st Bmt due to Chronic Gramultosius Disease in 2016 ,in the RVI in Newcastle. It was a whirlwind from been diagnosed in the October to having it the following march. The support we got from the bubble foundation in Newcastle was fantastic. He is potentially facing a second one next yr. Hes Chimerism count had died off and is now at critical stage. My heads swimming with all the questions. The risks involved now hes 24 a adult the risks are higher. A lot of people dont understand ,apologies hugely and no offence meant . But it the diagnosed was cancer i think more people would. So sorry if this is maybe the wrong place . But just needed to say hi and get it off my chest. Has anyone on here had or are dealing with Chronic Gramultosius Disease. Thank you for reading this ❤ Helen a very worried mum x

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**Author:** ![Liam\_at\_AnthonyNolan](https://avatars.discourse-cdn.com/v4/letter/l/9d8465/32.png) [@Liam\_at\_AnthonyNolan](https://patientforum.anthonynolan.org/u/Liam_at_AnthonyNolan)\
**Post date:** [September 12, 2024, 1:25pm UTC](https://patientforum.anthonynolan.org/t/my-son-adam-2nd-bone-marrow-transplant/621/2 "2024-09-12T13:25:53Z")

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Hi Helen,

I am Liam, the Patients and Families Manager at Anthony Nolan. I am sorry to hear of the difficulties your son Adam has been having.

I wanted to wait to see if any other forum members reached out with their own experiences, but I don’t think there isn’t anyone here dealing with Chronic Granulomatous Disease. I have found a charity that deals with CGD and here is the link : [https://cgdsociety.org/](https://cgdsociety.org/)

There is a lot of information and areas of support available there too.

All the best  
Liam