Thank you Michelle.
Unfortunately the tingling and burning sensation is getting worse not improving, I am not so sure it is due to the vaccine. Another phone call to the Heamotolog department might be in order.
Hello RussButler,
Thanks for posting on the forum, I am the lead nurse in patient services. Its good that your Haematology team are aware of you symptoms and I would encourage you to contact them if you feel they are getting worse. I would expect the symptoms to improve over time if caused by the vaccination. So its definitely best to check in with the medical team or your GP.
Feel free to update us on here or give us a call if you have any further questions.
Best wishes
Hayley
Hi
I just wanted to add group six of priority groups covers carers. It is put in as addendum on the goverment website. If you rely on a person for full time care so if they got ill you wouldnt be able to cope they may be able to get your carer the vaccine. Speak with your doctor. I’m six months out and reliant on my partner.
Stay safe x
So it is now about 6 weeks since I had the Oxford jab and I have definitely developed Peripheral Neuropathy. If this is due to the vaccine or something else has not been established and probably never will be.
Unfortunately the only solution offered by my consultant was Pregablin, a pain killer.
Peripheral Neuropathy is far from pleasant and comes as a real set back two and a half years post transplant, not helped by my wife who seems to think I am pretending it is a lot worse than it it actually is.
Fortunately my feet are not to bad but my hands are awful, especially in the early hours due to the burning/tingling pain and stiffness in my fingers when I wake up.
Hopefully time will help bit I have a nasty feeling I am going to have to learn to live with this.?
I think I will ask to be referred to a neurologist.
Hi RussButler
It sounds like a tough situation for you. It can be unsettling to develop new diagnosis’ after 2 and half years post SCT.
I am sure you are feeling frustrated but does knowing what your experiencing help in any way?
I take pregabalin and it is a nerve pain killer so hopefully it will give you some relief. It is a drug that, in my experience, has been flexible. On bad flare ups i have higher doses and on occassions I have lower doses.
I have never had side effects so hoping you get on well with it too.
Peripheral Nueropathy is incredibly uncomfortable. I have it, although in the warmer seasons i find it isn’t too bad. Post SCT my hands where badly affected but wore warm gloves and compression bandages on my hands which helped. Unsure on why!
I hope in time you can find ways to cope with the pain. I would ask to be refered to a Neurologist. They can advise on pain therapies and medications.
I see a pain team and it real helps with working through the acceptance of long term chronic pain. It will help your wife also to understand Neuropathy and its ‘invisible’ presentation.
Keep us updated
All the best,
Michelle
Hi
I had neuropathy in my hands a year after chemo.it started in one and moved to other. I saw hand specialist and neurologist. I think neurologist is right person to see.
Mine was more to do with numbness it wasn’t painful but restricted my use of my hands to the extent I couldn’t open my front door or put on earrings.
I’m not an expert but using a hand splint helped at night. It takes time for the nerve to regrow 8 months or so but it did get a lot better eventually. It flares up every now and again when I’m stressed but am able to do things.
In mean time I was told to avoid muscle wastage in my hands to do exercises like squeeze a stress ball a few times a day and use some stretchy bands round my fingers.
I can understand it is very hard but hopefully it will improve over time.
Hi all,
As an update, I had my second vaccination a couple of days ago; Astra Zeneca again. Next to no side effects this time I’m pleased to say. I don’t have a sore arm at all and haven’t had a headache this time as I did with the first dose.
I guess there are others of you out there that have also had your second jabs now. How has it been for you? Better, worse or the same?
All the best,
Steve
Hi Steve
I had my second vaccine two weeks ago now. It was Pfizer i had. I was unwell with both vaccines. Paracetamol was enough to cover the first dose but not the second. I just mainly felt tired and sick all the time. I think it might be a vaccine thing though as I was unwell after getting all my baby jabs again. I have spoken to others about getting the covid vaccine to see how they got on and got different answers each time.
Hope you are well
Cameron
Hello Steve and all,
I had my second vaccine yesterday. Pfizer which generaly speaking i have been fine with however
Im run down and recovering from laryngitis so im feeling groggy any way ?
A bit of a saw arm but not as bad as the first jab.
Feeling fortunate to have had both already.
All the best,
Michelle
Hi
I had my second Pfizer a few weeks ago I only had a slight tenderness in my arm, the same as with the first one.
Take care all
Bernie
I’m having mine tomorrow oxford was meant to be
Last week but got stuck in 4 hour traffic and then car wouldn’t start eek. Be glad to have it and did my first contraflow test. My family are taking these regularly which also helps. ?
Hi guys to update I had my second COVID Astra Zeneca. I felt flu for 2 days by third day I could go out for a small walk. Definetly I felt better this time, last time it went on for a week. Has anyone had a test for their antibodies second time round?
Hi Laulau1
Glad you didn’t feel so rough the second time. I had my second pfizer 3 weeks qgo and was fine. I haven’t done antibody test, i know a few people have been.
I do however do lateral flows 2 times a week as I am almost back to normal in regards to going out. Normal for me is attending face to face appointments.
Best,
Michelle
Morning all,
It’s good to hear that many of us are getting or have had our second vaccines. It seems tat there are still side effects with some people but they are generally short lived. I had a very mild headache in the afternoon follwing my early morning vaccination but nothing after that.
I feel a sense of relief at hopefuly having some protection though I remain cautious as ever. I’ve returned to work following the end of shielding but am working on a site where I am able to limit my exposure to only a small number of people.
It’s good to see the infection rates dropping in the UK and importantly the number of daily deaths has dropped. Fingers crossed we are on top of this now. My only concern is the fact that other parts of the world are lagging behind the UK in terms of vaccination programme and infection rates and whether that poses a residual risk to the UK.
In the meantime I hope all of you are feeling well and healthy and are coping well under the circumstances. Remember that me and the other community champions and the Anthony Nolan team are always here to help ease your concerns if we can.
All the best,
Steve