Hi
I’m Fiona
I had an MUD transplant for MDS nearly 4 years ago. For the last two years I have been struggling with GVHD of the skin. I have restricted movement in my arms and legs, very painful hands and now it is affecting my eyes and lungs. I have tried every treatment offered and nothing has helped. The consensus is this may be lifelong. I have to come to terms with this and somehow work around it. This is difficult as I am restricted in the distance I can walk and have a tendency to fall. Any ideas as to how I can get the best out of my circumstances?