Hi there!
My name is Jet, I’m 52 and I live in Nottingham. I have myeloma, which relapsed only five months after an autologous stem cell transplant (my own cells). After second line treatment, I had an allogeneic transplant from an unrelated donor. That was two years ago. I have just celebrated my two year anniversary.
I am in remission, but having ECP (extra-corporeal photopheresis) treatment for moderate Graft versus Host Disease (lungs, guts, eyes, mouth, scleroderma/skin). I’m doing well, with a good quality of life, but I have slight mobility issues and breathlessness. I have had excellent support and care from the Haematology team at Nottingham City Hospital and would highly recommend it as a centre for treatment.
I volunteer with Anthony Nolan, for Register & Be a Lifesaver - going into schools and colleges to give talks about stem cell, organ and blood donation, as well as helping with recruitment events. I’ve also enjoyed helping with a few other projects and campaigns. I think Anthony Nolan is a brilliant organisation and I have found all the staff I’ve met or spoken with to be helpful, warm, friendly and professional.