Hi my husband day +60 of SCT and home but trying to navigate normality is proving hard! I know he’s the patient but im finding it hard because he doesn’t ever say how he feels and I feel our whole world been torn apart and turned upside down.! He seems v distant and kinda low but to talk with him about his feelings is not happening!
Hello Janey, and welcome to the Forum.
It’s very understandable that you’re struggling with life post transplant. The impact of SCT goes beyond the patient, and I’m sure many of our forum users will empathise with you.
You may find it helpful to talk to someone who understands the challenges you’re going through. Our Telephone Emotional Support Service offers a series of appointments with a trained professional with experience of supporting those going through SCT. It is available to patients and their families, and is free to access. If you or your husband would like to access this service, please email us at Patientinfo@anthonynolan.org, or call our Helpline between 9am-5pm, Monday-Friday (excluding public holidays).
Sending our best wishes to you and your husband
Sarah
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Hi @Janey
Sorry to read about your husband and it must be really hard for both of you right now.
I had a transplant April 2025 and was totally reliant on my wife for the 9 weeks in hospital and the long and slow recovery over several months.
Everyone deals with things differently and what I found was just to take things a day at a time.
Just being there for him right now is the best support you can give him.
Take care
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Hi Duncan
Many thanks for your reply…
Can I ask you, did you feel different after the transplant??? Did you kinda lose your confidence?? It’s almost like Andy wants to tell everyone friends and family the journey, even tho they’ve heard it all b4? And i personally don’t actually want to keep hearing the story…think because as his wife ive struggled with this whole journey!! Hope you don’t mind me asking?
Jane x